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How I learned to communicate my inner life with Asperger's

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    Today, I want to talk to you about dreams.
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    I have been a lucid dreamer my whole life,
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    and it's cooler than in the movies.
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    (Laughter)
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    Beyond flying, breathing fire,
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    and making hot men
    spontaneously appear ...
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    (Laughter)
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    I can do things like read and write music.
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    Fun fact is that I wrote
    my personal statement to college
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    in a dream.
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    And I did accepted. So, yeah.
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    I am a very visual thinker.
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    I think in pictures, not words.
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    To me, words are more like
    instincts and language.
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    There are many people like me;
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    Nikola Tesla, for example,
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    who could visualize, design,
    test, and troubleshoot everything --
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    all of his inventions --
    in his mind, accurately.
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    Language is kind of exclusive
    to our species, anyway.
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    I am a bit more primitive,
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    like a beta version of Google Translate.
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    (Laughter)
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    My brain has the ability
    to hyper-focus on things that interest me.
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    For example, once
    I had an affair with calculus
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    that lasted longer
    than some celebrity marriages.
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    (Laughter)
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    There are some other
    unusual things about me.
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    You may have noticed
    that I don't have much inflection
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    in my voice.
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    That's why people
    often confuse me with a GPS.
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    (Laughter)
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    This can make basic communication
    a challenge, unless you need directions.
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    (Laughter)
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    Thank you.
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    (Applause)
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    A few years ago, when I started
    doing presentations,
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    I went to get head shots done
    for the first time.
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    The photographer told me to look flirty.
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    (Laughter)
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    And I had no idea
    what she was talking about.
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    (Laughter)
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    She said, "Do that thing,
    you know, with your eyes,
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    when you're flirting with guys."
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    "What thing?" I asked.
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    "You know, squint."
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    And so I tried, really.
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    It looked something like this.
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    (Laughter)
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    I looked like I was searching for Waldo.
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    (Laughter)
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    There's a reason for this,
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    as there is a reason that Waldo is hiding.
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    (Laughter)
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    I have Asperger's,
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    a high-functioning form of autism
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    that impairs the basic social skills
    one is expected to display.
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    It's made life difficult in many ways,
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    and growing up,
    I struggled to fit in socially.
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    My friends would tell jokes,
    but I didn't understand them.
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    My personal heroes were George Carlin
    and Stephen Colbert --
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    and they taught me humor.
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    My personality switched
    from being shy and awkward
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    to being defiant and cursing out a storm.
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    Needless to say,
    I did not have many friends.
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    I was also hypersensitive to texture.
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    The feel of water on my skin
    was like pins and needles,
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    and so for years, I refused to shower.
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    I can assure you that my hygiene routine
    is up to standards now, though.
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    (Laughter)
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    I had to do a lot to get here,
    and my parents --
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    things kind of got out of control
    when I was sexually assaulted by a peer,
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    and on top of everything,
    it made a difficult situation worse.
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    And I had to travel 2,000 miles
    across the country to get treatment,
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    but within days of them prescribing
    a new medication,
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    my life turned into an episode
    of the Walking Dead.
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    I became paranoid,
    and began to hallucinate
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    that rotting corpses
    were coming towards me.
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    My family finally rescued me,
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    but by that time, I had lost 19 pounds
    in those three weeks,
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    as well as developing severe anemia,
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    and was on the verge of suicide.
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    I transferred to a new treatment center
    that understood my aversions,
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    my trauma, and my social anxiety,
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    and they knew how to treat it,
    and I got the help I finally needed.
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    And after 18 months of hard work,
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    I went on to do incredible things.
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    One of the things with Asperger's
    is that oftentimes,
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    these people have
    a very complex inner life,
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    and I know for myself,
    I have a very colorful personality,
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    rich ideas, and just a lot
    going on in my mind.
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    But there's a gap
    between where that stands,
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    and how I communicate it
    with the rest of the world.
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    And this can make
    basic communication a challenge.
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    Not many places would hire me,
    due to my lack of social skills,
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    which is why I applied to Waffle House.
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    (Laughter)
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    Waffle House is an exceptional
    24-hour diner --
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    (Laughter)
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    (Applause)
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    thank you --
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    where you can order your hash browns
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    the many ways that someone
    would dispose of a human corpse ...
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    (Laughter)
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    Sliced, diced, peppered, chunked,
    topped, capped, and covered.
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    (Laughter)
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    As social norms would have it,
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    you should only go to Waffle House
    at an ungodly hour in the night.
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    (Laughter)
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    So one time, at 2 am, I was chatting
    with a waitress, and I asked her,
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    "What's the most ridiculous thing
    that's happened to you on the job?"
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    And she told me that one time,
    a man walked in completely naked.
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    (Laughter)
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    I said, "Great! Sign me up
    for the graveyard shift!"
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    (Laughter)
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    Needless to say,
    Waffle House did not hire me.
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    So in terms of having Asperger's,
    it can be viewed as a disadvantage,
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    and sometimes it is
    a real pain in the butt,
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    but it's also the opposite.
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    It's a gift, and it allows me
    to think innovatively.
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    At 19, I won a research competition
    for my research on coral reefs,
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    and I ended up speaking
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    at the UN Convention
    of Biological Diversity,
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    presenting this research.
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    (Applause)
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    Thank you.
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    (Applause)
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    And at 22, I'm getting ready
    to graduate college,
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    and I am a co-founder of a biotech
    company called AutismSees.
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    (Applause)
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    Thank you.
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    (Applause)
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    But consider what I had to do to get here:
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    25 therapists, 11 misdiagnoses,
    and years of pain and trauma.
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    I spent a lot of time thinking
    if there's a better way,
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    and I think there is:
    autism-assistive technology.
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    This technology
    could play an integral role
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    in helping people
    with autistic spectrum disorder,
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    or ASD.
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    The app Podium, released
    by my company, AutismSees,
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    has the ability to independently assess
    and help develop communication skills.
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    In addition to this, it tracks
    eye contact through camera
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    and simulates a public-speaking
    and job-interview experience.
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    And so maybe one day,
    Waffle House will hire me,
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    after practicing on it some more.
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    (Laughter)
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    And one of the great things
    is that I've used Podium
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    to help me prepare for today,
    and it's been a great help.
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    But it's more than that.
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    There's more that can be done.
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    For people with ASD --
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    it has been speculated
    that many innovative scientists,
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    researchers, artists,
    and engineers have it;
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    like, for example, Emily Dickinson,
    Jane Austen, Isaac Newton, and Bill Gates
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    are some examples.
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    But the problem that's encountered
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    is that these brilliant ideas
    often can't be shared
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    if there are communication roadblocks.
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    And so, many people with autism
    are being overlooked every day,
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    and they're being taken advantage of.
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    So my dream for people with autism
    is to change that,
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    to remove the roadblocks
    that prevent them from succeeding.
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    One of the reasons I love lucid dreaming
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    is because it allows me to be free,
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    without judgment of social
    and physical consequences.
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    When I'm flying over scenes
    that I create in my mind,
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    I am at peace.
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    I am free from judgment,
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    and so I can do whatever I want, you know?
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    I'm making out with Brad Pitt,
    and Angelina is totally cool with it.
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    (Laughter)
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    But the goal of autism-assistive
    technology is bigger than that,
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    and more important.
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    My goal is to shift people's perspective
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    of autism and people
    with higher-functioning Asperger's
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    because there is a lot they can do.
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    I mean, look at
    Temple Grandin, for example.
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    And by doing so, we allow people
    to share their talents with this world
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    and move this world forward.
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    In addition, we give them the courage
    to pursue their dreams
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    in the real world, in real time.
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    Thank you.
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    (Applause)
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    Thank you.
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    (Applause)
Title:
How I learned to communicate my inner life with Asperger's
Speaker:
Alix Generous
Description:

Alix Generous is a young woman with a million and one ideas — she's done award-winning science, helped develop new technology and tells a darn good joke (you'll see). She has Asperger's, a form of autistic spectrum disorder that can impair the basic social skills required for communication, and she's worked hard for years to learn how to share her thoughts with the world. In this funny, personal talk, she shares her story — and her vision for tools to help more people communicate their big ideas.

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Video Language:
English
Team:
closed TED
Project:
TEDTalks
Duration:
10:26

English subtitles

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