How I learned to communicate my inner life with Asperger's
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0:01 - 0:03Today, I want to talk to you about dreams.
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0:04 - 0:07I have been a lucid dreamer my whole life,
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0:07 - 0:09and it's cooler than in the movies.
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0:09 - 0:11(Laughter)
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0:11 - 0:13Beyond flying, breathing fire,
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0:13 - 0:16and making hot men
spontaneously appear ... -
0:16 - 0:18(Laughter)
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0:18 - 0:21I can do things like read and write music.
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0:21 - 0:25Fun fact is that I wrote
my personal statement to college -
0:25 - 0:26in a dream.
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0:26 - 0:29And I did accepted. So, yeah.
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0:30 - 0:32I am a very visual thinker.
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0:32 - 0:35I think in pictures, not words.
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0:35 - 0:39To me, words are more like
instincts and language. -
0:40 - 0:42There are many people like me;
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0:42 - 0:44Nikola Tesla, for example,
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0:44 - 0:49who could visualize, design,
test, and troubleshoot everything -- -
0:49 - 0:53all of his inventions --
in his mind, accurately. -
0:55 - 0:58Language is kind of exclusive
to our species, anyway. -
0:58 - 1:00I am a bit more primitive,
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1:00 - 1:03like a beta version of Google Translate.
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1:03 - 1:05(Laughter)
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1:07 - 1:11My brain has the ability
to hyper-focus on things that interest me. -
1:11 - 1:14For example, once
I had an affair with calculus -
1:14 - 1:17that lasted longer
than some celebrity marriages. -
1:17 - 1:20(Laughter)
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1:21 - 1:23There are some other
unusual things about me. -
1:24 - 1:27You may have noticed
that I don't have much inflection -
1:27 - 1:28in my voice.
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1:28 - 1:32That's why people
often confuse me with a GPS. -
1:32 - 1:35(Laughter)
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1:36 - 1:40This can make basic communication
a challenge, unless you need directions. -
1:40 - 1:44(Laughter)
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1:44 - 1:46Thank you.
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1:46 - 1:50(Applause)
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1:51 - 1:54A few years ago, when I started
doing presentations, -
1:54 - 1:56I went to get head shots done
for the first time. -
1:57 - 2:00The photographer told me to look flirty.
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2:00 - 2:02(Laughter)
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2:02 - 2:05And I had no idea
what she was talking about. -
2:05 - 2:07(Laughter)
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2:07 - 2:09She said, "Do that thing,
you know, with your eyes, -
2:09 - 2:11when you're flirting with guys."
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2:11 - 2:13"What thing?" I asked.
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2:14 - 2:15"You know, squint."
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2:16 - 2:17And so I tried, really.
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2:17 - 2:19It looked something like this.
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2:19 - 2:22(Laughter)
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2:22 - 2:24I looked like I was searching for Waldo.
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2:25 - 2:27(Laughter)
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2:29 - 2:30There's a reason for this,
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2:30 - 2:33as there is a reason that Waldo is hiding.
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2:33 - 2:37(Laughter)
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2:41 - 2:43I have Asperger's,
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2:43 - 2:45a high-functioning form of autism
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2:45 - 2:48that impairs the basic social skills
one is expected to display. -
2:51 - 2:54It's made life difficult in many ways,
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2:54 - 2:58and growing up,
I struggled to fit in socially. -
2:58 - 3:02My friends would tell jokes,
but I didn't understand them. -
3:02 - 3:07My personal heroes were George Carlin
and Stephen Colbert -- -
3:07 - 3:09and they taught me humor.
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3:11 - 3:15My personality switched
from being shy and awkward -
3:15 - 3:18to being defiant and cursing out a storm.
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3:18 - 3:21Needless to say,
I did not have many friends. -
3:22 - 3:24I was also hypersensitive to texture.
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3:25 - 3:28The feel of water on my skin
was like pins and needles, -
3:28 - 3:31and so for years, I refused to shower.
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3:31 - 3:35I can assure you that my hygiene routine
is up to standards now, though. -
3:35 - 3:37(Laughter)
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3:38 - 3:43I had to do a lot to get here,
and my parents -- -
3:43 - 3:48things kind of got out of control
when I was sexually assaulted by a peer, -
3:48 - 3:52and on top of everything,
it made a difficult situation worse. -
3:53 - 3:59And I had to travel 2,000 miles
across the country to get treatment, -
3:59 - 4:03but within days of them prescribing
a new medication, -
4:03 - 4:05my life turned into an episode
of the Walking Dead. -
4:06 - 4:09I became paranoid,
and began to hallucinate -
4:09 - 4:12that rotting corpses
were coming towards me. -
4:13 - 4:16My family finally rescued me,
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4:16 - 4:20but by that time, I had lost 19 pounds
in those three weeks, -
4:20 - 4:23as well as developing severe anemia,
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4:23 - 4:25and was on the verge of suicide.
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4:26 - 4:31I transferred to a new treatment center
that understood my aversions, -
4:31 - 4:35my trauma, and my social anxiety,
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4:35 - 4:38and they knew how to treat it,
and I got the help I finally needed. -
4:38 - 4:41And after 18 months of hard work,
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4:41 - 4:44I went on to do incredible things.
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4:45 - 4:48One of the things with Asperger's
is that oftentimes, -
4:48 - 4:50these people have
a very complex inner life, -
4:50 - 4:53and I know for myself,
I have a very colorful personality, -
4:53 - 4:57rich ideas, and just a lot
going on in my mind. -
4:57 - 5:00But there's a gap
between where that stands, -
5:00 - 5:03and how I communicate it
with the rest of the world. -
5:03 - 5:07And this can make
basic communication a challenge. -
5:08 - 5:11Not many places would hire me,
due to my lack of social skills, -
5:11 - 5:14which is why I applied to Waffle House.
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5:14 - 5:19(Laughter)
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5:20 - 5:24Waffle House is an exceptional
24-hour diner -- -
5:24 - 5:26(Laughter)
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5:26 - 5:29(Applause)
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5:29 - 5:31thank you --
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5:31 - 5:33where you can order your hash browns
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5:33 - 5:36the many ways that someone
would dispose of a human corpse ... -
5:36 - 5:38(Laughter)
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5:38 - 5:42Sliced, diced, peppered, chunked,
topped, capped, and covered. -
5:42 - 5:44(Laughter)
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5:44 - 5:46As social norms would have it,
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5:46 - 5:49you should only go to Waffle House
at an ungodly hour in the night. -
5:49 - 5:51(Laughter)
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5:51 - 5:55So one time, at 2 am, I was chatting
with a waitress, and I asked her, -
5:55 - 5:58"What's the most ridiculous thing
that's happened to you on the job?" -
5:59 - 6:02And she told me that one time,
a man walked in completely naked. -
6:02 - 6:03(Laughter)
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6:04 - 6:06I said, "Great! Sign me up
for the graveyard shift!" -
6:06 - 6:09(Laughter)
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6:09 - 6:12Needless to say,
Waffle House did not hire me. -
6:14 - 6:18So in terms of having Asperger's,
it can be viewed as a disadvantage, -
6:18 - 6:20and sometimes it is
a real pain in the butt, -
6:20 - 6:22but it's also the opposite.
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6:22 - 6:26It's a gift, and it allows me
to think innovatively. -
6:27 - 6:34At 19, I won a research competition
for my research on coral reefs, -
6:34 - 6:35and I ended up speaking
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6:35 - 6:37at the UN Convention
of Biological Diversity, -
6:37 - 6:39presenting this research.
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6:39 - 6:41(Applause)
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6:41 - 6:42Thank you.
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6:42 - 6:47(Applause)
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6:47 - 6:51And at 22, I'm getting ready
to graduate college, -
6:51 - 6:55and I am a co-founder of a biotech
company called AutismSees. -
6:56 - 6:57(Applause)
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6:57 - 6:59Thank you.
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6:59 - 7:01(Applause)
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7:01 - 7:04But consider what I had to do to get here:
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7:04 - 7:1025 therapists, 11 misdiagnoses,
and years of pain and trauma. -
7:11 - 7:14I spent a lot of time thinking
if there's a better way, -
7:14 - 7:18and I think there is:
autism-assistive technology. -
7:19 - 7:21This technology
could play an integral role -
7:21 - 7:23in helping people
with autistic spectrum disorder, -
7:23 - 7:25or ASD.
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7:26 - 7:31The app Podium, released
by my company, AutismSees, -
7:31 - 7:37has the ability to independently assess
and help develop communication skills. -
7:37 - 7:42In addition to this, it tracks
eye contact through camera -
7:42 - 7:48and simulates a public-speaking
and job-interview experience. -
7:49 - 7:51And so maybe one day,
Waffle House will hire me, -
7:51 - 7:53after practicing on it some more.
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7:53 - 7:55(Laughter)
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7:57 - 8:03And one of the great things
is that I've used Podium -
8:03 - 8:08to help me prepare for today,
and it's been a great help. -
8:08 - 8:09But it's more than that.
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8:09 - 8:11There's more that can be done.
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8:12 - 8:15For people with ASD --
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8:15 - 8:20it has been speculated
that many innovative scientists, -
8:20 - 8:25researchers, artists,
and engineers have it; -
8:25 - 8:31like, for example, Emily Dickinson,
Jane Austen, Isaac Newton, and Bill Gates -
8:31 - 8:32are some examples.
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8:32 - 8:34But the problem that's encountered
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8:34 - 8:38is that these brilliant ideas
often can't be shared -
8:38 - 8:40if there are communication roadblocks.
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8:41 - 8:46And so, many people with autism
are being overlooked every day, -
8:46 - 8:48and they're being taken advantage of.
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8:49 - 8:56So my dream for people with autism
is to change that, -
8:56 - 8:59to remove the roadblocks
that prevent them from succeeding. -
9:00 - 9:02One of the reasons I love lucid dreaming
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9:02 - 9:05is because it allows me to be free,
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9:05 - 9:09without judgment of social
and physical consequences. -
9:10 - 9:13When I'm flying over scenes
that I create in my mind, -
9:13 - 9:14I am at peace.
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9:15 - 9:17I am free from judgment,
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9:17 - 9:19and so I can do whatever I want, you know?
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9:19 - 9:24I'm making out with Brad Pitt,
and Angelina is totally cool with it. -
9:24 - 9:26(Laughter)
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9:28 - 9:32But the goal of autism-assistive
technology is bigger than that, -
9:32 - 9:33and more important.
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9:34 - 9:38My goal is to shift people's perspective
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9:38 - 9:43of autism and people
with higher-functioning Asperger's -
9:43 - 9:47because there is a lot they can do.
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9:47 - 9:50I mean, look at
Temple Grandin, for example. -
9:50 - 9:55And by doing so, we allow people
to share their talents with this world -
9:55 - 9:58and move this world forward.
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9:58 - 10:01In addition, we give them the courage
to pursue their dreams -
10:01 - 10:03in the real world, in real time.
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10:03 - 10:04Thank you.
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10:04 - 10:08(Applause)
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10:08 - 10:09Thank you.
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10:09 - 10:13(Applause)
- Title:
- How I learned to communicate my inner life with Asperger's
- Speaker:
- Alix Generous
- Description:
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Alix Generous is a young woman with a million and one ideas — she's done award-winning science, helped develop new technology and tells a darn good joke (you'll see). She has Asperger's, a form of autistic spectrum disorder that can impair the basic social skills required for communication, and she's worked hard for years to learn how to share her thoughts with the world. In this funny, personal talk, she shares her story — and her vision for tools to help more people communicate their big ideas.
- Video Language:
- English
- Team:
- closed TED
- Project:
- TEDTalks
- Duration:
- 10:26
Cynthia Betubiza edited English subtitles for How I learned to communicate my inner life with Asperger's | ||
Krystian Aparta approved English subtitles for How I learned to communicate my inner life with Asperger's | ||
Krystian Aparta edited English subtitles for How I learned to communicate my inner life with Asperger's | ||
Krystian Aparta edited English subtitles for How I learned to communicate my inner life with Asperger's | ||
Krystian Aparta edited English subtitles for How I learned to communicate my inner life with Asperger's | ||
Krystian Aparta edited English subtitles for How I learned to communicate my inner life with Asperger's | ||
Krystian Aparta edited English subtitles for How I learned to communicate my inner life with Asperger's | ||
Camille Martínez accepted English subtitles for How I learned to communicate my inner life with Asperger's |