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How I learned to communicate my inner life with Asperger's

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    Today, I want to talk to you about dreams.
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    I have been a lucid dreamer my whole life,
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    and it's cooler than in the movies.
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    (Laughter)
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    Beyond flying, breathing fire,
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    and making hot men
    spontaneously appear ...
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    (Laughter)
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    ... I can do things like read
    and write music.
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    Fun fact is that I wrote
    my personal statement to college
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    in a dream.
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    And I did accepted. So, yeah.
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    I am a very visual thinker.
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    I think in pictures, not words.
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    To me, words are more like
    instincts and language.
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    There are many people like me;
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    Nikola Tesla, for example,
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    who could visualize, design,
    test, and troubleshoot everything --
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    all of his inventions --
    in his mind accurately.
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    Language is kind of exclusive
    to our species, anyway.
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    I am a bit more primitive,
    like a beta version of Google Translate.
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    (Laughter)
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    My brain has the ability
    to hyper-focus on things that interest me.
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    For example, once
    I had an affair with calculus
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    that lasted longer
    than some celebrity marriages.
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    (Laughter)
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    There are some other
    unusual things about me.
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    You may have noticed that
    I don't have much inflection
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    in my voice.
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    That's why people often
    confuse me with a GPS.
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    (Laughter)
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    This can make basic communication
    a challenge, unless you need directions.
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    (Laughter)
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    Thank you.
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    (Applause)
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    A few years ago, when I started
    doing presentations,
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    I went to get head shots done
    for the first time.
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    The photographer told me to look flirty.
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    (Laughter)
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    And I had no idea
    what she was talking about.
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    (Laughter)
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    She said, "Do that thing,
    you know, with your eyes,
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    when you're flirting with guys."
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    "What thing?" I asked.
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    "You know, squint."
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    And so I tried, really.
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    It looked something like this.
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    (Laughter)
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    I looked like I was searching for Waldo.
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    (Laughter)
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    There's a reason for this,
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    as there is a reason that Waldo is hiding.
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    (Laughter)
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    I have Asperger's,
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    a high-functioning form of autism
    that impairs the basic social skills
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    one is expected to display.
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    It's made life difficult in many ways,
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    and growing up, I struggled
    to fit in socially.
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    My friends would tell jokes,
    but I didn't understand them.
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    My personal heroes were George Carlin
    and Stephen Colbert,
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    and they taught me humor.
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    My personality switched
    from being shy and awkward,
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    to being defiant and cursing out a storm.
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    Needless to say,
    I did not have many friends.
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    I was also hypersensitive to texture.
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    The feel of water on my skin
    was like pins and needles,
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    and so for years I refused to shower.
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    I can assure you that my hygiene routine
    is up to standards now, though.
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    (Laughter)
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    I had to do a lot to get here,
    and my parents --
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    things kind of got out of control
    when I was sexually assaulted by a peer,
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    and on top of everything,
    it made a difficult situation worse.
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    And I had to travel 2,000 miles
    across the country to get treatment,
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    but within days of them prescribing
    a new medication,
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    my life turned into an episode
    of the Walking Dead.
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    I became paranoid,
    and began to hallucinate
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    that rotting corpses
    were coming towards me.
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    My family finally rescued me,
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    but by that time, I had lost 19 pounds
    in those three weeks,
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    as well as developed severe anemia,
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    and was on the verge of suicide.
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    I transferred to a new treatment center
    that understood my aversions,
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    my trauma, and my social anxiety,
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    and they knew how to treat it,
    and I got the help I finally needed.
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    And after 18 months of hard work,
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    I went on to do incredible things.
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    One of the things with Asperger's
    is that oftentimes,
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    these people have
    a very complex inner life,
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    and I know for myself,
    I have a very colorful personality,
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    rich ideas, and just a lot
    going on in my mind.
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    But there's a gap
    between where that stands,
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    and how I communicate it
    with the rest of the world.
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    And this can make
    basic communication a challenge.
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    Not many places would hire me
    due to my lack of social skills,
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    which is why I applied to Waffle House.
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    (Laughter)
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    Waffle House is an exceptional
    24-hour diner, where you --
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    (Laughter)
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    (Applause)
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    thank you --
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    where you can order your hash browns
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    the many ways that someone
    would dispose of a human corpse:
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    sliced, diced, peppered, chunked,
    topped, capped, and covered.
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    (Laughter)
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    As social norms would have it,
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    you should only go to Waffle House
    at an ungodly hour in the night.
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    So one time, at 2 a.m., I was chatting
    with a waitress, and I asked her,
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    "What's the most ridiculous thing
    that's happened to you on the job?"
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    And she told me that one time
    a man walked in completely naked.
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    I said, "Great! Sign me up
    for the graveyard shift!"
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    (Laughter)
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    Needless to say,
    Waffle House did not hire me.
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    So in terms of having Asperger's,
    it can be viewed as a disadvantage,
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    and sometimes it is
    a real pain in the butt,
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    but it's also the opposite.
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    It's a gift, and it allows me
    to think innovatively.
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    At 19, I won a research competition
    for my research on coral reefs,
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    and I ended up speaking
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    at the U.N. Convention
    of Biological Diversity,
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    presenting that research.
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    (Applause)
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    Thank you.
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    (Applause)
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    And at 22, I am getting ready
    to graduate college,
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    and I am a co-founder of a biotech
    company called AutismSees.
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    (Applause)
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    Thank you.
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    (Applause)
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    But consider what I had to do to get here:
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    25 therapists, 11 misdiagnoses,
    and years of pain and trauma.
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    I spend a lot of time thinking
    if there's a better way,
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    and I think there is:
    autism-assistive technology.
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    This technology could play
    an integral role
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    in helping people
    with autistic spectrum disorder,
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    or ASD.
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    The app Podium, released
    by my company, AutismSees,
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    has the ability to independently assess
    and help develop communication skills.
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    In addition to this, it tracks
    eye contact through camera
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    and simulates a public speaking
    job interview experience.
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    And so maybe one day,
    Waffle House will hire me,
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    after practicing on it some more.
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    (Laughter)
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    And one of the great things is
    that I've used Podium
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    to help me prepare for today,
    and it's been a great help.
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    But it's more than that.
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    There's more that can be done.
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    For people with ASD --
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    it has been speculated
    that many innovative scientists,
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    researchers, artists,
    and engineers have it;
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    like, for example, Emily Dickinson,
    Jane Austen, Isaac Newton, and Bill Gates
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    are some examples --
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    the problem that's encountered is that
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    these brilliant ideas
    often can't be shared
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    if there are communication roadblocks.
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    And so, many people with autism
    are being overlooked every day,
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    and they're being taken advantage of.
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    My dream for people with autism
    is to change that,
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    to remove the roadblocks
    that prevent them from succeeding.
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    One of the reasons I love lucid dreaming
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    is because it allows me to be free,
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    without judgment of social
    and physical consequences.
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    When I'm flying over scenes
    that I create in my mind,
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    I am at peace.
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    I am free from judgment,
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    and so I can do whatever I want, you know?
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    I'm making out with Brad Pitt,
    and Angelina is totally cool with it.
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    (Laughter)
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    But the goal of autism-assistive
    technology is bigger than that,
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    and more important.
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    My goal is to shift people's perspective
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    of autism and people
    with higher-functioning Asperger's
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    because there is a lot they can do --
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    I mean, look at
    Temple Grandin, for example.
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    And by doing so, we allow people
    to share their talents with this world
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    and move this world forward.
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    In addition, we give them the courage
    to pursue their dreams
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    in the real world, in real time.
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    Thank you.
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    (Applause)
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    Thank you.
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    (Applause)
Title:
How I learned to communicate my inner life with Asperger's
Speaker:
Alix Generous
Description:

more » « less
Video Language:
English
Team:
closed TED
Project:
TEDTalks
Duration:
10:26

English subtitles

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