Science didn't understand my kids' rare disease until I decided to study it
- Title:
- მეცნიერებამ ვერ ახსნა ჩემი შვილების იშვიათი დაავადება,სანამ მე თვითონ არ შევისწავლე ის
- Speaker:
- Sharon Terry
- Description:
-
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Meet Sharon Terry, a former college chaplain and stay-at-home mom who took the medical research world by storm when her two young children were diagnosed with a rare disease known as pseudoxanthoma elasticum (PXE). In this knockout of a talk, Terry explains how she and her husband became citizen scientists, working midnight shifts at the lab to find the gene behind PXE and establishing mandates that require other researchers to share biological samples and work together.
- Video Language:
- English
- Team:
- closed TED
- Project:
- TEDTalks
- Duration:
- 15:02
Guranda Dzamelashvili edited Georgian subtitles for Science didn't understand my kids' rare disease until I decided to study it | ||
Guranda Dzamelashvili edited Georgian subtitles for Science didn't understand my kids' rare disease until I decided to study it | ||
Guranda Dzamelashvili edited Georgian subtitles for Science didn't understand my kids' rare disease until I decided to study it | ||
Guranda Dzamelashvili edited Georgian subtitles for Science didn't understand my kids' rare disease until I decided to study it | ||
Guranda Dzamelashvili edited Georgian subtitles for Science didn't understand my kids' rare disease until I decided to study it | ||
Guranda Dzamelashvili edited Georgian subtitles for Science didn't understand my kids' rare disease until I decided to study it |