Science didn't understand my kids' rare disease until I decided to study it
- Title:
- La scienza non ha compreso la rara malattia dei miei figli fino a quando non ho deciso di studiarla io stessa.
- Speaker:
- Sharon Terry
- Description:
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Meet Sharon Terry, a former college chaplain and stay-at-home mom who took the medical research world by storm when her two young children were diagnosed with a rare disease known as pseudoxanthoma elasticum (PXE). In this knockout of a talk, Terry explains how she and her husband became citizen scientists, working midnight shifts at the lab to find the gene behind PXE and establishing mandates that require other researchers to share biological samples and work together.
- Video Language:
- English
- Team:
- closed TED
- Project:
- TEDTalks
- Duration:
- 15:02
Maria Carmina Distratto accepted Italian subtitles for Science didn't understand my kids' rare disease until I decided to study it | ||
Maria Carmina Distratto edited Italian subtitles for Science didn't understand my kids' rare disease until I decided to study it | ||
Alessandra Tadiotto edited Italian subtitles for Science didn't understand my kids' rare disease until I decided to study it | ||
Alessandra Tadiotto edited Italian subtitles for Science didn't understand my kids' rare disease until I decided to study it | ||
Alessandra Tadiotto edited Italian subtitles for Science didn't understand my kids' rare disease until I decided to study it | ||
Alessandra Tadiotto edited Italian subtitles for Science didn't understand my kids' rare disease until I decided to study it | ||
Retired user edited Italian subtitles for Science didn't understand my kids' rare disease until I decided to study it |