Science didn't understand my kids' rare disease until I decided to study it
- Title:
- La ciència no va entendre la rara malaltia dels meus fills fins que vaig decidir estudiar-la.
- Speaker:
- Sharon Terry
- Description:
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Meet Sharon Terry, a former college chaplain and stay-at-home mom who took the medical research world by storm when her two young children were diagnosed with a rare disease known as pseudoxanthoma elasticum (PXE). In this knockout of a talk, Terry explains how she and her husband became citizen scientists, working midnight shifts at the lab to find the gene behind PXE and establishing mandates that require other researchers to share biological samples and work together.
- Video Language:
- English
- Team:
- closed TED
- Project:
- TEDTalks
- Duration:
- 15:02
María Ruiz edited Catalan subtitles for Science didn't understand my kids' rare disease until I decided to study it | ||
María Ruiz edited Catalan subtitles for Science didn't understand my kids' rare disease until I decided to study it | ||
María Ruiz edited Catalan subtitles for Science didn't understand my kids' rare disease until I decided to study it | ||
María Ruiz edited Catalan subtitles for Science didn't understand my kids' rare disease until I decided to study it | ||
María Ruiz edited Catalan subtitles for Science didn't understand my kids' rare disease until I decided to study it | ||
María Ruiz edited Catalan subtitles for Science didn't understand my kids' rare disease until I decided to study it | ||
María Ruiz edited Catalan subtitles for Science didn't understand my kids' rare disease until I decided to study it | ||
María Ruiz edited Catalan subtitles for Science didn't understand my kids' rare disease until I decided to study it |