WEBVTT 00:00:13.355 --> 00:00:17.265 Our voice is our strongest and most vital tool in life. 00:00:17.665 --> 00:00:19.555 We use it to express our opinions, 00:00:19.964 --> 00:00:21.675 to make statements, 00:00:21.675 --> 00:00:23.555 to agree or disagree, 00:00:24.227 --> 00:00:26.537 to reveal our innermost emotions, 00:00:26.588 --> 00:00:29.528 to say 'yes', but to say that important 'no'. 00:00:30.166 --> 00:00:33.556 We use it to share ideas worth spreading. 00:00:34.429 --> 00:00:36.329 But what if you had no voice? 00:00:36.329 --> 00:00:38.735 What if you had no speech? 00:00:39.487 --> 00:00:42.321 Malala Yousafzai, a human rights activist, 00:00:42.321 --> 00:00:44.691 the youngest person to win the Nobel Peace Prize 00:00:44.691 --> 00:00:47.676 and who was a victim of attempted murder by the Taliban 00:00:47.676 --> 00:00:54.521 once said: "We realize the importance of our voices only when we are silenced". 00:00:56.491 --> 00:01:00.491 15% of the world's population has a disability, 00:01:00.756 --> 00:01:04.006 that is one billion people. 00:01:05.652 --> 00:01:10.742 Africa, as a continent, has one billion people living in the continent, 00:01:10.759 --> 00:01:13.599 that is how many people have a disability. 00:01:13.971 --> 00:01:18.561 Furthermore, 190 million people in the world have a severe disability, 00:01:18.561 --> 00:01:21.538 the vast majority of that being a communication disability, 00:01:21.567 --> 00:01:23.547 that affects their daily functioning. 00:01:24.348 --> 00:01:28.288 The population size of Pakistan has a 190 million people there. 00:01:28.444 --> 00:01:30.174 That is the same amount. 00:01:31.058 --> 00:01:35.498 Within South Africa, 200,000 people cannot talk. 00:01:36.214 --> 00:01:38.254 Let me put this in context. 00:01:38.262 --> 00:01:41.672 The largest stadium in South Africa is the FNB Stadium 00:01:42.290 --> 00:01:47.450 and in 2011, 95,000 very excited fans filled that stadium 00:01:47.474 --> 00:01:49.554 for the rocking U2 band. 00:01:50.192 --> 00:01:54.962 I was a part of that 95,000 audience, there were a lot of people. 00:01:55.636 --> 00:01:58.546 If you had to fill this stadium twice, 00:01:58.592 --> 00:02:02.722 that is how many people in South Africa have no voice. 00:02:03.839 --> 00:02:07.140 Individuals with disabilities are also four times more likely 00:02:07.140 --> 00:02:10.470 to be victims of crime, compared to their non-disabled peers. 00:02:10.523 --> 00:02:14.718 And this is even a more alarming concern in our developing countries. 00:02:15.345 --> 00:02:17.195 What if you couldn't tell a loved one 00:02:17.195 --> 00:02:20.253 that something horrible had happened to you, like, you had been raped? 00:02:20.306 --> 00:02:23.602 What if you couldn't go to the police and give a statement 00:02:23.602 --> 00:02:25.361 and tell them what happened? 00:02:25.361 --> 00:02:28.121 What if you couldn't tell the social worker what happened 00:02:28.121 --> 00:02:31.000 in order to help you with the court preparation process? 00:02:31.244 --> 00:02:33.644 What if you couldn't tell the judge what happened? 00:02:33.664 --> 00:02:36.017 What if you couldn't testify? 00:02:36.017 --> 00:02:38.567 What if you just had no words? 00:02:40.604 --> 00:02:43.540 So how do we assist these individuals with no voices? 00:02:43.540 --> 00:02:46.920 How do we help in ending the silence with them? 00:02:47.185 --> 00:02:52.055 We use AAC: Alternative and Argumentative Communication. 00:02:52.594 --> 00:02:54.661 What is AAC, you may ask? 00:02:54.661 --> 00:02:58.034 The most famous person who uses AAC is Dr. Stephen Hawkin, 00:02:58.034 --> 00:03:00.274 the world-renowned physicist. 00:03:00.684 --> 00:03:04.394 He uses a sensor that is activated by a small muscle in his cheek 00:03:04.400 --> 00:03:07.730 that speaks to his computer and then speaks for him. 00:03:08.565 --> 00:03:12.345 Another well-known person is the South-African born Martin Pistorius. 00:03:12.657 --> 00:03:16.257 He also uses his computer with software as voice output. 00:03:16.387 --> 00:03:18.874 Martin has overcome many challenges 00:03:18.874 --> 00:03:21.624 and has gone on to do inspirational things. 00:03:21.725 --> 00:03:25.065 He gave a TED Talk last year and you should really go watch it. 00:03:25.335 --> 00:03:28.465 But let me show you a video quickly of my colleague Constance. 00:03:28.584 --> 00:03:31.924 She is using AAC, she is using her Android phone 00:03:31.924 --> 00:03:34.464 with software as her voice. 00:03:36.552 --> 00:03:39.717 Being a victim of rape and not having a voice 00:03:39.717 --> 00:03:42.482 has so much impact and it can be damaging 00:03:42.482 --> 00:03:44.222 because we may be pregnant 00:03:44.222 --> 00:03:46.542 or expose to diseases 00:03:47.201 --> 00:03:50.921 and can be discovered on a later stage or never. 00:03:53.124 --> 00:03:56.484 So AAC can be in the form of a tablet with software, 00:03:56.484 --> 00:04:00.754 it can be a dedicated device designed specifically for communication purposes, 00:04:00.754 --> 00:04:03.554 it can be sign language like Hanelle spoke about 00:04:03.565 --> 00:04:06.735 or it can be a picture-based alphabet board. 00:04:07.105 --> 00:04:10.735 But what if the person who has no voice is now not literate? 00:04:10.735 --> 00:04:13.145 Dr. Stephen Hawking and Martin Pistorius, 00:04:13.172 --> 00:04:16.012 they can read and write, they can use text-to-speech. 00:04:16.364 --> 00:04:18.764 So how do we assist these individuals? 00:04:18.774 --> 00:04:23.544 A later study estimated that 90% of our children with disabilities 00:04:23.544 --> 00:04:26.194 are not literate and do not stand schooling. 00:04:26.497 --> 00:04:28.267 How do we help them? 00:04:28.281 --> 00:04:29.551 We use pictures. 00:04:29.958 --> 00:04:32.998 Or, like what we say in our field, graphic symbols. 00:04:33.477 --> 00:04:35.437 Currently, there is no complete language 00:04:35.437 --> 00:04:38.277 that is in the form of pictures or graphic symbols. 00:04:38.358 --> 00:04:41.318 And if you think that the average person has a vocabulary size 00:04:41.318 --> 00:04:43.828 of 25,000 to 35,000 words, 00:04:43.828 --> 00:04:46.168 you could see how this would be a mammoth task 00:04:46.168 --> 00:04:48.528 to try and identify pictures for all of this. 00:04:48.986 --> 00:04:53.196 So what we do if we identify context-specific vocabulary? 00:04:53.386 --> 00:04:57.386 There are many researches identifying vocabulary for context 00:04:57.456 --> 00:05:00.066 that are able to put it on a communication board 00:05:00.085 --> 00:05:02.725 or program it into a communication device. 00:05:03.432 --> 00:05:08.472 But many times, important context vocabulary is not identified, 00:05:08.472 --> 00:05:10.559 like being a victim of crime. 00:05:11.271 --> 00:05:14.571 This is an example of a picture communication board. 00:05:15.266 --> 00:05:20.516 But let me stop and ask you a question: if you could, in one picture, 00:05:20.516 --> 00:05:24.516 represent the word 'rape', what would it be? 00:05:26.534 --> 00:05:28.564 It's not as easy as you think. 00:05:29.184 --> 00:05:32.294 That is why people like me are investing our time and energy 00:05:32.294 --> 00:05:35.974 in identifying this important vocabulary and matching into pictures 00:05:35.975 --> 00:05:40.245 so that in times of need, when a person who is not literate, who has no voice, 00:05:40.258 --> 00:05:44.258 and has been a victim of crime can stand up and still tell their story. 00:05:45.247 --> 00:05:48.517 Our work at the Center for Alternative and Argumentative Communication 00:05:48.517 --> 00:05:50.227 at the University of Pretoria 00:05:50.227 --> 00:05:55.357 and currently a significant research project is underway doing exactly this. 00:05:55.734 --> 00:05:58.894 Currently what we have identified, and this is one of the examples, 00:05:58.894 --> 00:06:03.184 we are very proud of this work, we identified vocabulary that is needed 00:06:03.184 --> 00:06:06.064 to disclose the crime to a loved one. 00:06:06.064 --> 00:06:09.306 What we are also doing is identifying vocabulary that is needed 00:06:09.306 --> 00:06:12.666 to give the statement to the police, because we know the statement 00:06:12.666 --> 00:06:15.596 forms a crucial part of evidence when we go to court. 00:06:15.817 --> 00:06:18.837 We are also looking at identifying vocabulary that is needed 00:06:18.837 --> 00:06:22.142 during the court preparation process with the social worker. 00:06:22.142 --> 00:06:26.212 And what my contribution was, is identifying the important vocabulary 00:06:26.212 --> 00:06:28.112 that is needed to testify in court. 00:06:28.112 --> 00:06:31.942 Here are some examples: [Who, where, what, when, how] 00:06:31.942 --> 00:06:36.142 Next year, I will be embarking on my PhD journey, what I'm aiming to do 00:06:36.142 --> 00:06:41.502 is take all of this vocabulary, make it readily available in the form of a toolkit 00:06:41.502 --> 00:06:44.742 so that this can be used as a guideline or a base practice model 00:06:44.752 --> 00:06:46.783 not only for the legal professionals, 00:06:46.783 --> 00:06:49.513 but for the families and familiar communication partners 00:06:49.513 --> 00:06:51.525 that are working for these individuals 00:06:51.525 --> 00:06:53.485 who have been victims of crime. 00:06:53.512 --> 00:06:56.762 AAC in the form of pictures has the amazing ability 00:06:56.762 --> 00:06:59.522 to bring these individuals' voices forth. 00:07:00.293 --> 00:07:04.533 Imagine a world where every person who couldn't talk had the right vocabulary 00:07:04.533 --> 00:07:07.133 and the right device to be able to communicate. 00:07:07.629 --> 00:07:09.582 The risks of them being a victim of crime 00:07:09.582 --> 00:07:12.592 or a repeat victim could decrease drastically. 00:07:13.436 --> 00:07:17.436 Let us stop for a moment and think about those 200,000 individuals 00:07:17.436 --> 00:07:22.013 and the vast majority of the 190 million people living in the world 00:07:22.013 --> 00:07:26.473 who cannot talk, specifically those who are not literate. 00:07:26.473 --> 00:07:28.893 If we could give them this vital vocabulary, 00:07:28.893 --> 00:07:33.283 they would be empowered to be heard and not hurt. 00:07:33.582 --> 00:07:34.745 Thank you very much. 00:07:34.745 --> 00:07:36.315 (Applause)