1 00:00:13,355 --> 00:00:17,265 Our voice is our strongest and most vital tool in life. 2 00:00:17,665 --> 00:00:19,555 We use it to express our opinions, 3 00:00:19,964 --> 00:00:21,675 to make statements, 4 00:00:21,675 --> 00:00:23,555 to agree or disagree, 5 00:00:24,227 --> 00:00:26,537 to reveal our innermost emotions, 6 00:00:26,588 --> 00:00:29,528 to say 'yes', but to say that important 'no'. 7 00:00:30,166 --> 00:00:33,556 We use it to share ideas worth spreading. 8 00:00:34,429 --> 00:00:36,329 But what if you had no voice? 9 00:00:36,329 --> 00:00:38,735 What if you had no speech? 10 00:00:39,487 --> 00:00:42,321 Malala Yousafzai, a human rights activist, 11 00:00:42,321 --> 00:00:44,691 the youngest person to win the Nobel Peace Prize 12 00:00:44,691 --> 00:00:47,676 and who was a victim of attempted murder by the Taliban 13 00:00:47,676 --> 00:00:54,521 once said: "We realize the importance of our voices only when we are silenced". 14 00:00:56,491 --> 00:01:00,491 15% of the world's population has a disability, 15 00:01:00,756 --> 00:01:04,006 that is one billion people. 16 00:01:05,652 --> 00:01:10,742 Africa, as a continent, has one billion people living in the continent, 17 00:01:10,759 --> 00:01:13,599 that is how many people have a disability. 18 00:01:13,971 --> 00:01:18,561 Furthermore, 190 million people in the world have a severe disability, 19 00:01:18,561 --> 00:01:21,538 the vast majority of that being a communication disability, 20 00:01:21,567 --> 00:01:23,547 that affects their daily functioning. 21 00:01:24,348 --> 00:01:28,288 The population size of Pakistan has a 190 million people there. 22 00:01:28,444 --> 00:01:30,174 That is the same amount. 23 00:01:31,058 --> 00:01:35,498 Within South Africa, 200,000 people cannot talk. 24 00:01:36,214 --> 00:01:38,254 Let me put this in context. 25 00:01:38,262 --> 00:01:41,672 The largest stadium in South Africa is the FNB Stadium 26 00:01:42,290 --> 00:01:47,450 and in 2011, 95,000 very excited fans filled that stadium 27 00:01:47,474 --> 00:01:49,554 for the rocking U2 band. 28 00:01:50,192 --> 00:01:54,962 I was a part of that 95,000 audience, there were a lot of people. 29 00:01:55,636 --> 00:01:58,546 If you had to fill this stadium twice, 30 00:01:58,592 --> 00:02:02,722 that is how many people in South Africa have no voice. 31 00:02:03,839 --> 00:02:07,140 Individuals with disabilities are also four times more likely 32 00:02:07,140 --> 00:02:10,470 to be victims of crime, compared to their non-disabled peers. 33 00:02:10,523 --> 00:02:14,718 And this is even a more alarming concern in our developing countries. 34 00:02:15,345 --> 00:02:17,195 What if you couldn't tell a loved one 35 00:02:17,195 --> 00:02:20,253 that something horrible had happened to you, like, you had been raped? 36 00:02:20,306 --> 00:02:23,602 What if you couldn't go to the police and give a statement 37 00:02:23,602 --> 00:02:25,361 and tell them what happened? 38 00:02:25,361 --> 00:02:28,121 What if you couldn't tell the social worker what happened 39 00:02:28,121 --> 00:02:31,000 in order to help you with the court preparation process? 40 00:02:31,244 --> 00:02:33,644 What if you couldn't tell the judge what happened? 41 00:02:33,664 --> 00:02:36,017 What if you couldn't testify? 42 00:02:36,017 --> 00:02:38,567 What if you just had no words? 43 00:02:40,604 --> 00:02:43,540 So how do we assist these individuals with no voices? 44 00:02:43,540 --> 00:02:46,920 How do we help in ending the silence with them? 45 00:02:47,185 --> 00:02:52,055 We use AAC: Alternative and Argumentative Communication. 46 00:02:52,594 --> 00:02:54,661 What is AAC, you may ask? 47 00:02:54,661 --> 00:02:58,034 The most famous person who uses AAC is Dr. Stephen Hawkin, 48 00:02:58,034 --> 00:03:00,274 the world-renowned physicist. 49 00:03:00,684 --> 00:03:04,394 He uses a sensor that is activated by a small muscle in his cheek 50 00:03:04,400 --> 00:03:07,730 that speaks to his computer and then speaks for him. 51 00:03:08,565 --> 00:03:12,345 Another well-known person is the South-African born Martin Pistorius. 52 00:03:12,657 --> 00:03:16,257 He also uses his computer with software as voice output. 53 00:03:16,387 --> 00:03:18,874 Martin has overcome many challenges 54 00:03:18,874 --> 00:03:21,624 and has gone on to do inspirational things. 55 00:03:21,725 --> 00:03:25,065 He gave a TED Talk last year and you should really go watch it. 56 00:03:25,335 --> 00:03:28,465 But let me show you a video quickly of my colleague Constance. 57 00:03:28,584 --> 00:03:31,924 She is using AAC, she is using her Android phone 58 00:03:31,924 --> 00:03:34,464 with software as her voice. 59 00:03:36,552 --> 00:03:39,717 Being a victim of rape and not having a voice 60 00:03:39,717 --> 00:03:42,482 has so much impact and it can be damaging 61 00:03:42,482 --> 00:03:44,222 because we may be pregnant 62 00:03:44,222 --> 00:03:46,542 or expose to diseases 63 00:03:47,201 --> 00:03:50,921 and can be discovered on a later stage or never. 64 00:03:53,124 --> 00:03:56,484 So AAC can be in the form of a tablet with software, 65 00:03:56,484 --> 00:04:00,754 it can be a dedicated device designed specifically for communication purposes, 66 00:04:00,754 --> 00:04:03,554 it can be sign language like Hanelle spoke about 67 00:04:03,565 --> 00:04:06,735 or it can be a picture-based alphabet board. 68 00:04:07,105 --> 00:04:10,735 But what if the person who has no voice is now not literate? 69 00:04:10,735 --> 00:04:13,145 Dr. Stephen Hawking and Martin Pistorius, 70 00:04:13,172 --> 00:04:16,012 they can read and write, they can use text-to-speech. 71 00:04:16,364 --> 00:04:18,764 So how do we assist these individuals? 72 00:04:18,774 --> 00:04:23,544 A later study estimated that 90% of our children with disabilities 73 00:04:23,544 --> 00:04:26,194 are not literate and do not stand schooling. 74 00:04:26,497 --> 00:04:28,267 How do we help them? 75 00:04:28,281 --> 00:04:29,551 We use pictures. 76 00:04:29,958 --> 00:04:32,998 Or, like what we say in our field, graphic symbols. 77 00:04:33,477 --> 00:04:35,437 Currently, there is no complete language 78 00:04:35,437 --> 00:04:38,277 that is in the form of pictures or graphic symbols. 79 00:04:38,358 --> 00:04:41,318 And if you think that the average person has a vocabulary size 80 00:04:41,318 --> 00:04:43,828 of 25,000 to 35,000 words, 81 00:04:43,828 --> 00:04:46,168 you could see how this would be a mammoth task 82 00:04:46,168 --> 00:04:48,528 to try and identify pictures for all of this. 83 00:04:48,986 --> 00:04:53,196 So what we do if we identify context-specific vocabulary? 84 00:04:53,386 --> 00:04:57,386 There are many researches identifying vocabulary for context 85 00:04:57,456 --> 00:05:00,066 that are able to put it on a communication board 86 00:05:00,085 --> 00:05:02,725 or program it into a communication device. 87 00:05:03,432 --> 00:05:08,472 But many times, important context vocabulary is not identified, 88 00:05:08,472 --> 00:05:10,559 like being a victim of crime. 89 00:05:11,271 --> 00:05:14,571 This is an example of a picture communication board. 90 00:05:15,266 --> 00:05:20,516 But let me stop and ask you a question: if you could, in one picture, 91 00:05:20,516 --> 00:05:24,516 represent the word 'rape', what would it be? 92 00:05:26,534 --> 00:05:28,564 It's not as easy as you think. 93 00:05:29,184 --> 00:05:32,294 That is why people like me are investing our time and energy 94 00:05:32,294 --> 00:05:35,974 in identifying this important vocabulary and matching into pictures 95 00:05:35,975 --> 00:05:40,245 so that in times of need, when a person who is not literate, who has no voice, 96 00:05:40,258 --> 00:05:44,258 and has been a victim of crime can stand up and still tell their story. 97 00:05:45,247 --> 00:05:48,517 Our work at the Center for Alternative and Argumentative Communication 98 00:05:48,517 --> 00:05:50,227 at the University of Pretoria 99 00:05:50,227 --> 00:05:55,357 and currently a significant research project is underway doing exactly this. 100 00:05:55,734 --> 00:05:58,894 Currently what we have identified, and this is one of the examples, 101 00:05:58,894 --> 00:06:03,184 we are very proud of this work, we identified vocabulary that is needed 102 00:06:03,184 --> 00:06:06,064 to disclose the crime to a loved one. 103 00:06:06,064 --> 00:06:09,306 What we are also doing is identifying vocabulary that is needed 104 00:06:09,306 --> 00:06:12,666 to give the statement to the police, because we know the statement 105 00:06:12,666 --> 00:06:15,596 forms a crucial part of evidence when we go to court. 106 00:06:15,817 --> 00:06:18,837 We are also looking at identifying vocabulary that is needed 107 00:06:18,837 --> 00:06:22,142 during the court preparation process with the social worker. 108 00:06:22,142 --> 00:06:26,212 And what my contribution was, is identifying the important vocabulary 109 00:06:26,212 --> 00:06:28,112 that is needed to testify in court. 110 00:06:28,112 --> 00:06:31,942 Here are some examples: [Who, where, what, when, how] 111 00:06:31,942 --> 00:06:36,142 Next year, I will be embarking on my PhD journey, what I'm aiming to do 112 00:06:36,142 --> 00:06:41,502 is take all of this vocabulary, make it readily available in the form of a toolkit 113 00:06:41,502 --> 00:06:44,742 so that this can be used as a guideline or a base practice model 114 00:06:44,752 --> 00:06:46,783 not only for the legal professionals, 115 00:06:46,783 --> 00:06:49,513 but for the families and familiar communication partners 116 00:06:49,513 --> 00:06:51,525 that are working for these individuals 117 00:06:51,525 --> 00:06:53,485 who have been victims of crime. 118 00:06:53,512 --> 00:06:56,762 AAC in the form of pictures has the amazing ability 119 00:06:56,762 --> 00:06:59,522 to bring these individuals' voices forth. 120 00:07:00,293 --> 00:07:04,533 Imagine a world where every person who couldn't talk had the right vocabulary 121 00:07:04,533 --> 00:07:07,133 and the right device to be able to communicate. 122 00:07:07,629 --> 00:07:09,582 The risks of them being a victim of crime 123 00:07:09,582 --> 00:07:12,592 or a repeat victim could decrease drastically. 124 00:07:13,436 --> 00:07:17,436 Let us stop for a moment and think about those 200,000 individuals 125 00:07:17,436 --> 00:07:22,013 and the vast majority of the 190 million people living in the world 126 00:07:22,013 --> 00:07:26,473 who cannot talk, specifically those who are not literate. 127 00:07:26,473 --> 00:07:28,893 If we could give them this vital vocabulary, 128 00:07:28,893 --> 00:07:33,283 they would be empowered to be heard and not hurt. 129 00:07:33,582 --> 00:07:34,745 Thank you very much. 130 00:07:34,745 --> 00:07:36,315 (Applause)