[Script Info]
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[Events]
Format: Layer, Start, End, Style, Name, MarginL, MarginR, MarginV, Effect, Text
Dialogue: 0,0:00:23.00,0:00:31.00,Default,,0000,0000,0000,,Helen Cotton-Leiser, Parent Partner, Oregon: I spoke with my nurse practitioner and he observed my daughter, and he has a deaf stepdaughter, so I felt really
Dialogue: 0,0:00:31.00,0:00:39.00,Default,,0000,0000,0000,,comfortable. And after the tubes were put in, she was responding to airplanes, but nobody suspected anything with her.\N
Dialogue: 0,0:00:39.00,0:00:43.00,Default,,0000,0000,0000,,I mean, she would crawl away and you'd call her name, and she'd turn around and look.\N
Dialogue: 0,0:00:43.00,0:00:51.00,Default,,0000,0000,0000,,And he observed her and he said, I really have no idea, but we need to get her tested.
Dialogue: 0,0:00:51.00,0:00:58.00,Default,,0000,0000,0000,,And so he set up for us in a different clinic and spoke with that audiologist, so there were no blinking lights.\N
Dialogue: 0,0:00:58.00,0:01:07.00,Default,,0000,0000,0000,,I mean, you could tell right away. And I could see through the booth watching that she was not hearing anything.
Dialogue: 0,0:01:13.00,0:01:22.00,Default,,0000,0000,0000,,And then my youngest, before we knew with her, she would cry and I would-- before she could see me, start talking to her.
Dialogue: 0,0:01:22.00,0:01:29.00,Default,,0000,0000,0000,,And I swear she calmed down. And it was really confusing because I was paying attention and a lot more aware.
Dialogue: 0,0:01:29.00,0:01:38.00,Default,,0000,0000,0000,,And my husband and I were going around and around, like I think she can hear.But then I also think she can't.
Dialogue: 0,0:01:43.00,0:01:50.00,Default,,0000,0000,0000,,We actually ended up going a private route because the public route was so frustrating from the very beginning.
Dialogue: 0,0:01:50.00,0:02:02.00,Default,,0000,0000,0000,,And I couldn't even just kind of get someone to explain how\Nto get from A to Z. And it was very clear that-- at least I\Nwalked away feeling like i wasn't going
Dialogue: 0,0:02:02.00,0:02:07.00,Default,,0000,0000,0000,,to be allowed to be the parent and be equal at the table.
Dialogue: 0,0:02:07.00,0:02:12.00,Default,,0000,0000,0000,,From the get-go, I was told what I had to do, that this was how it was done.
Dialogue: 0,0:02:12.00,0:02:18.00,Default,,0000,0000,0000,,And so that's a huge driver in how I am approaching things with this project.
Dialogue: 0,0:02:25.00,0:02:33.00,Default,,0000,0000,0000,,I see that they really want that parent perspective.\NIt's kind of nice, actually. Because there are times
Dialogue: 0,0:02:33.00,0:02:36.00,Default,,0000,0000,0000,,when we would just feel like we're just a parent, but we're not.
Dialogue: 0,0:02:36.00,0:02:43.00,Default,,0000,0000,0000,,We actually have some really good input, even if it's just our own story.
Dialogue: 0,0:02:43.00,0:02:50.00,Default,,0000,0000,0000,,One of the things that we're going to introduce into the project is the midwife community.
Dialogue: 0,0:02:50.00,0:02:56.00,Default,,0000,0000,0000,,We have about 700 or more-- it's actually over 700 births a year that are out-of-hospital births,
Dialogue: 0,0:02:56.00,0:03:02.00,Default,,0000,0000,0000,,and a large percentage of those babies don't get any newborn hearing screen.
Dialogue: 0,0:03:18.00,0:03:31.00,Default,,0000,0000,0000,,There's an emotional connection with our providers and we need to know that they're current with deaf education and that they're able to talk to us about
Dialogue: 0,0:03:31.00,0:03:35.00,Default,,0000,0000,0000,,what our options are, and that they're open to that and they're going to listen to us.
Dialogue: 0,0:03:35.00,0:03:41.00,Default,,0000,0000,0000,,We have people doing this for 20 years, but they're using a model from 20 years ago.\N
Dialogue: 0,0:03:41.00,0:03:50.00,Default,,0000,0000,0000,,And that's not the model that's serving our kids today. Our kids are just deaf or hard of hearing. And with the right tools and the right intervention,
Dialogue: 0,0:03:50.00,0:03:58.00,Default,,0000,0000,0000,,they can go off and do anything. But they need the right stuff from the very beginning, and so do the parents.