1 00:00:05,316 --> 00:00:08,422 I want to first say that I want to dedicate this talk 2 00:00:08,422 --> 00:00:14,382 to all the folks who lean into the unknown and share their stories anyway. 3 00:00:14,382 --> 00:00:17,319 I want to dedicate this talk to my wife, Amy. 4 00:00:17,319 --> 00:00:20,659 (Applause) 5 00:00:23,719 --> 00:00:28,839 I want to begin by sharing with you all a part of myself. 6 00:00:28,839 --> 00:00:31,314 It's something that I don't talk frequently about. 7 00:00:32,407 --> 00:00:36,505 When I was 17, I was diagnosed with manic depression. 8 00:00:36,505 --> 00:00:37,684 I want to stop there 9 00:00:37,684 --> 00:00:42,984 because by uttering those two small words, "manic depression", 10 00:00:42,986 --> 00:00:48,206 I've just created very strong negative ripple effect in this auditorium. 11 00:00:49,858 --> 00:00:52,650 Perhaps you're now viewing my body differently than you did 12 00:00:52,650 --> 00:00:54,326 when you heard my intro. 13 00:00:54,326 --> 00:00:58,476 Perhaps you're ascribing stereotypes onto my body that aren't mine. 14 00:00:59,228 --> 00:01:02,793 I think it's important that you all know that at this point I want to say, 15 00:01:02,793 --> 00:01:05,678 "Thank you all for listening", and I want to go off stage, 16 00:01:05,678 --> 00:01:07,538 but I'm going to stay. 17 00:01:07,538 --> 00:01:10,798 (Applause) 18 00:01:12,128 --> 00:01:13,560 So much clapping. 19 00:01:13,560 --> 00:01:15,050 (Laughter) 20 00:01:17,017 --> 00:01:20,560 We're all familiar with the phrases "depression", 21 00:01:20,560 --> 00:01:23,377 we're familiar with the term "mania". 22 00:01:23,377 --> 00:01:26,575 Perhaps you've used these words colloquially. 23 00:01:26,575 --> 00:01:30,785 "I feel so depressed today." "He's acting so manic." 24 00:01:31,458 --> 00:01:33,841 For me, mania and depression 25 00:01:33,841 --> 00:01:38,141 were felt in more invasive, regular everyday ways. 26 00:01:38,720 --> 00:01:41,213 They literally invaded into my everyday. 27 00:01:41,213 --> 00:01:44,010 And although this is just my experience, 28 00:01:44,010 --> 00:01:45,953 I think that it's important to know too 29 00:01:45,953 --> 00:01:48,323 that everyone's experience is radically different. 30 00:01:49,540 --> 00:01:52,196 I was 17, I graduated high school, 31 00:01:52,196 --> 00:01:56,496 I was beginning my journey into a local JC, 32 00:01:56,496 --> 00:02:01,175 and for me, depression felt like an overwhelming weightiness. 33 00:02:01,175 --> 00:02:03,975 I felt like I was in a room without a door knob. 34 00:02:03,975 --> 00:02:06,071 Getting out of the bed and beginning the day 35 00:02:06,071 --> 00:02:08,421 was a success in and of itself. 36 00:02:09,336 --> 00:02:11,536 I was so suicidal that I couldn't drive, 37 00:02:11,536 --> 00:02:15,191 so my mother would drive me to my college, 38 00:02:15,191 --> 00:02:19,101 wait for three hours in the parking lot, pick me up, drive me back home. 39 00:02:19,750 --> 00:02:23,158 Although it wasn't as frequent or as long-standing, 40 00:02:23,158 --> 00:02:27,798 for me, mania was an overwhelming sense of focus and energy, 41 00:02:27,798 --> 00:02:30,303 and I truly felt, invincible. 42 00:02:31,366 --> 00:02:34,720 By the time I finished my PhD work, 43 00:02:34,720 --> 00:02:37,040 I was hospitalized four times. 44 00:02:37,976 --> 00:02:42,936 Now, this is not how I was going to start my TED talk. 45 00:02:42,936 --> 00:02:44,252 Not even close. 46 00:02:44,252 --> 00:02:47,290 I was going to talk to you all 47 00:02:47,290 --> 00:02:49,797 about the statistics surrounding madness. 48 00:02:49,797 --> 00:02:52,159 I was going to talk to you about semantics. 49 00:02:52,159 --> 00:02:54,597 I was going to tell you about the history, 50 00:02:54,597 --> 00:02:58,166 of how we conceive of and inscribe madness, 51 00:02:58,166 --> 00:03:01,757 and it wasn't until the fourth draft of my talk that I realized 52 00:03:01,757 --> 00:03:05,592 I had completely written myself out of this conversation, 53 00:03:05,592 --> 00:03:08,975 and I had to pause and ask myself why. 54 00:03:08,975 --> 00:03:13,285 Why in a talk where I was going to explore the negative ripple effects 55 00:03:13,285 --> 00:03:16,895 created by the ways in which we conceive of madness, 56 00:03:16,895 --> 00:03:19,576 had I written out my narrative? 57 00:03:19,576 --> 00:03:22,767 A narrative that so completely fit into the conversation. 58 00:03:22,767 --> 00:03:25,329 And the answer is simple, 59 00:03:25,329 --> 00:03:28,604 and I think absolutely problematic in its simplicity. 60 00:03:28,604 --> 00:03:31,429 And it's one word. 61 00:03:31,429 --> 00:03:35,017 It's shame and it's stigma. 62 00:03:35,017 --> 00:03:38,211 Even as I stand here before all of you, 63 00:03:38,211 --> 00:03:43,181 I am feeling very apprehensive about how I am being read, 64 00:03:43,181 --> 00:03:44,970 how my body is being read, 65 00:03:44,970 --> 00:03:49,230 by my former, my current, my future students. 66 00:03:49,687 --> 00:03:54,197 How is my body and my identity being read by my colleagues. 67 00:03:54,197 --> 00:04:00,343 Am I being read as inferior, as incompetent, as untrustworthy? 68 00:04:01,754 --> 00:04:06,884 Some of you might even be sitting and thinking quietly to yourselves, 69 00:04:06,884 --> 00:04:09,638 "But she doesn't look crazy." 70 00:04:09,638 --> 00:04:15,438 And to that question, I ask you, but what does craziness look like? 71 00:04:15,438 --> 00:04:18,919 And in fact, we have been taught what craziness looks like, right? 72 00:04:18,919 --> 00:04:22,951 Many institutions in our society have taught us 73 00:04:22,951 --> 00:04:28,521 and have helped us cultivate a very strict and rigid understanding of madness. 74 00:04:28,521 --> 00:04:31,401 And just to illustrate the speed at which this happens, 75 00:04:31,401 --> 00:04:34,274 and has happened for all of us since we were very young, 76 00:04:34,274 --> 00:04:37,504 I want you all to pause with me and think. 77 00:04:37,504 --> 00:04:41,394 What do you think of, what images, what connotations, 78 00:04:41,394 --> 00:04:45,065 what do you think of when you hear the word "insane"? 79 00:04:45,065 --> 00:04:48,692 What do you think of when you hear the word "crazy"? 80 00:04:48,692 --> 00:04:54,352 What connotations and images come to mind when you hear the phrase "mental illness"? 81 00:04:55,837 --> 00:04:58,439 Perhaps your thoughts and your images 82 00:04:58,439 --> 00:05:03,559 are informed by the way the news media ascribes disabilities, 83 00:05:03,559 --> 00:05:06,509 psychiatric disabilities, and madness. 84 00:05:06,509 --> 00:05:10,314 Perhaps your thoughts are informed by literature, 85 00:05:10,314 --> 00:05:12,864 by graphic novels, by the movies. 86 00:05:12,864 --> 00:05:14,814 I go to the movies. 87 00:05:16,393 --> 00:05:19,343 Perhaps you thought of "Girl Interrupted", 88 00:05:20,670 --> 00:05:23,000 "One Flew Over the Cuckoo's Nest", 89 00:05:24,188 --> 00:05:25,368 "Psycho", 90 00:05:26,403 --> 00:05:27,823 "Mommy Dearest", 91 00:05:28,938 --> 00:05:30,458 or "A Beautiful Mind". 92 00:05:31,816 --> 00:05:36,466 Irregardless of where you've given these images 93 00:05:36,466 --> 00:05:39,007 or where you've gotten these images from, 94 00:05:39,007 --> 00:05:43,977 I think that a very rigid list of stereotypes gets created. 95 00:05:43,977 --> 00:05:48,293 And although we probably did it together and keep adding to this list, 96 00:05:48,293 --> 00:05:51,108 a very brief list is as follows. 97 00:05:51,108 --> 00:05:57,314 Folks with psychiatric disabilities are often viewed as being dangerous, 98 00:05:57,314 --> 00:06:00,913 unpredictable, incompetent, 99 00:06:00,913 --> 00:06:05,593 unstable, irrational, and irresponsible. 100 00:06:06,486 --> 00:06:10,128 Now, the images or connotations 101 00:06:10,128 --> 00:06:12,768 that you so quickly call to mind 102 00:06:12,768 --> 00:06:15,819 when I ask you all to pause and just meditate on the words 103 00:06:15,819 --> 00:06:19,781 "insane", "crazy", and "mental illness", 104 00:06:19,781 --> 00:06:23,360 the images that I've pulled up that my mind went to, 105 00:06:23,360 --> 00:06:25,961 and this list of stereotypes, 106 00:06:25,961 --> 00:06:31,402 this is why it took me four drafts to write myself in this talk. 107 00:06:31,402 --> 00:06:36,922 The sheer universality of these terms and these images, and the weightiness 108 00:06:36,922 --> 00:06:40,004 regulate folks with psychiatric disabilities, 109 00:06:40,004 --> 00:06:41,434 regulate me. 110 00:06:42,809 --> 00:06:47,739 I think it's really important to know that, unlike other illnesses of the mind, 111 00:06:47,739 --> 00:06:52,607 psychiatric disabilities carry with them something that's very distinct and unique. 112 00:06:52,607 --> 00:06:55,937 They carry a moral judgement on the individual. 113 00:06:57,829 --> 00:07:01,521 So, what do we do with all of this? 114 00:07:01,521 --> 00:07:03,557 Before telling you that, I want to tell you 115 00:07:03,557 --> 00:07:05,941 what the purpose of this talk is not. 116 00:07:05,941 --> 00:07:08,833 I think often, when folks with disabilities of any kind 117 00:07:08,833 --> 00:07:11,380 share their narratives or speak, 118 00:07:11,380 --> 00:07:14,857 they are often seen as an inspiration. 119 00:07:14,857 --> 00:07:18,571 Their story is meant to be heard and is meant to inspire you 120 00:07:18,571 --> 00:07:21,012 to bettering your life as non-disabled folks, 121 00:07:21,012 --> 00:07:24,027 or even as other disabled folks. 122 00:07:24,027 --> 00:07:28,277 I am here to tell you that I am not your inspiration. 123 00:07:28,277 --> 00:07:29,924 That's not my purpose. 124 00:07:29,924 --> 00:07:32,715 The purpose of this talk is to ask 125 00:07:32,715 --> 00:07:36,931 that we collectively cultivate a community and space 126 00:07:36,931 --> 00:07:40,251 for unlearning the stereotypes and stigmas 127 00:07:40,251 --> 00:07:42,651 that we ascribe to psychiatric disabilities. 128 00:07:43,812 --> 00:07:46,088 I want us to live in a place 129 00:07:46,088 --> 00:07:49,084 where someone sharing that they have manic depression 130 00:07:49,084 --> 00:07:54,184 is as benign as someone saying to another person, "I have diabetes." 131 00:07:55,520 --> 00:07:58,488 I want us to live in a place where the moral judgements 132 00:07:58,488 --> 00:08:03,038 that often get placed onto folks with psychiatric disabilities is removed. 133 00:08:04,310 --> 00:08:09,497 I want us to live in a place where I can come before a group of people, 134 00:08:12,894 --> 00:08:16,346 and stand and say, "My name is Shayda Kafai. 135 00:08:16,346 --> 00:08:19,480 I'm a professor in the Ethnic and Women Studies Department 136 00:08:19,480 --> 00:08:23,565 at Cal Poly Pomona. I have manic depression." 137 00:08:09,497 --> 00:08:11,587 or just a person, 138 00:08:11,587 --> 00:08:12,894 this way, 139 00:08:23,565 --> 00:08:24,649 Thank you. 140 00:08:24,649 --> 00:08:26,999 (Applause)