1
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我想帶畀你哋一個新嘅視野

2
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聽起來好壯觀，佢的確係

3
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我勤日上晝離開愛爾蘭

4
00:00:09,880 --> 00:00:12,336
從都柏林飛到紐約

5
00:00:12,360 --> 00:00:13,560
自己一個人

6
00:00:14,080 --> 00:00:15,976
但係個飛機場

7
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飛機同機場侯機樓嘅設計

8
00:00:18,560 --> 00:00:22,480
為身高只有 105.5 厘米嘅人
提供好少嘅獨立空間

9
00:00:23,200 --> 00:00:26,440
對美國人嚟講，即係3英尺5英寸

10
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我坐住輪椅，俾工作人員
推住穿過飛機場

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其實，我唔使坐輪椅

12
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但係飛機場嘅設計

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加上佢冇障礙輔助功能

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使到我唯有咁來過個飛機場

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我嘅隨身行李放喺腳邊

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我被人推過安檢，境外入境審查

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之後來佐入機口

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我利用無障礙輔助服務

19
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因為多數侯機設計
都無考慮到我咁嘅人

20
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就攞安檢舉個例

21
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我根本就唔夠大隻將我個隨身行李

22
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從地下抬上個運輸帶

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我同運輸帶差唔多高矮

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係嗰個崗位嘅工作人員
因為安全性嘅緣故

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唔可以幫我

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設計約束到我嘅自主同獨立能力

27
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但係我咁嘅體型去旅遊，都唔係壞事

28
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經濟艙對我類講，就寬敞到好似商務艙

29
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(笑聲)

30
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我經常都會唔記得我係一位矮人

31
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係物理環境同社會提醒我

32
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去公共廁所係一個好痛苦嘅經驗

33
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我行入去厠所間

34
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但係我手掂唔到個門鎖

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我係有創意同適應能力

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我睇下有冇垃圾桶可以畀我反過做凳

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安全？

38
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唔係

39
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乾淨同衛生？

40
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肯定唔係

41
00:02:05,760 --> 00:02:07,380
但係另外嘅選擇仲衰

42
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如果嗰個方法行唔通，我用手機

43
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佢將我加長四到六英寸

44
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我試著用我嘅蘋果手機去鎖上個門鎖

45
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我惗喬納森艾維
當初設計蘋果唔係畀我咁用嘅

46
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但係呢招真係得

47
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另一個辦法就係去搵生普人幫手

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我會猛咁道歉

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叫佢哋企喺我廁所間前邊幫我睇住

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佢哋就企

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之後我猛咁講多謝

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又覺得好尷尬

53
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希望佢哋當時冇睇到

54
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我冇洗手就走咗


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我日日都會隨身帶消毒洗手液

56
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因為我都唔夠高用

57
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洗手盤，肥皂機，烘乾機，同埋鏡

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宜家，無障礙廁所係我另一個選擇

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喺呢個空間裡邊，我可以踮到個門鎖，

60
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洗手盤，肥皂機，烘乾機，同埋塊鏡

61
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冇錯，我仲係用唔到個馬桶

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個馬桶設計專登整高啲

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咁樣坐輪椅嘅人可以
好容易咁移到馬桶上面

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設計得非常之好，仲有創意

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設計界裡面嘅無障礙

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其實係咩意思呢？

67
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受益者又係邊個呢？

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邊啲人需要但又冇被列入考慮範圍？

69
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廁所就係一個例子

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佢嘅設計對我嘅尊嚴帶嚟好大打擊

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物理環境更加隨意咁影響我

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啲好簡單嘅事，比如叫杯咖啡

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我承認

74
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我飲太多咖啡

75
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我通常叫一杯脫脂雲呢嗱拿鐵

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我試緊戒糖漿

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個咖啡店設計得唔係幾好

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至少對我來講

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我企喺個甜點壁橱隔離個度排隊

80
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咖啡師叫下一個單時

81
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佢哋叫︰「唔該, 下一位啊。」

82
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佢哋見唔到我

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排喺我後邊嘅人會指出我嘅存在

84
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大家都覺得好尷尬

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於是我快啲落單，去旁邊等我杯咖啡

86
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大家用幾秒去惗下

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佢哋將杯咖啡放喺邊度

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放喺高處，仲冇蓋

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去攞我畀咗錢嘅咖啡

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係好危險嘅體驗

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連服裝設計都會打擊到我

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我想買啲可以突顯我嘅個性嘅服裝

93
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只不過咁嘅樣式，喺童裝部好難搵到

94
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好多時候女裝需要修改

95
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我想買會顯得我
成熟，專業，同埋有教養嘅鞋

96
00:05:02,160 --> 00:05:06,400
但係我得有魔術貼嘅帆布鞋
同會發光嘅鞋可以簡

97
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我唔係完完全全唔鍾意發光鞋

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（笑聲）

99
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設計同樣影響到一啲好簡單嘅事

100
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就比如坐喺個凳度

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從企到坐，我都做唔到優雅

102
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因為凳高度設計嘅標準

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我要用手同膝頭哥

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爬上個凳度

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而個凳分分鐘跌

106
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設計影響我，無論係凳

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廁所，咖啡店，亦或買衫

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我依靠

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生普人嘅善意

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但唔係人人都係好人

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生普人

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指住我

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望住我

114
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笑我

115
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同我起花名

116
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或影我相，時時提醒我，我係侏儒

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幾乎日日都有咁嘅事

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隨著社交媒體變得愈嚟愈廣泛

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佢畀咗我個平台做博客同行動家

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佢同樣令我緊張

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喺無經我同意嘅情況下

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我可能變成模因

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又或者突然變紅

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所以宜家我哋就用啲時間


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講清啲事

126
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「侏儒」係個貶義詞

127
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佢係從巴納姆嘅馬戲團
同畸形秀時代演變出嚟

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社會已經變咗

129
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所以我咃嘅用詞要跟上

130
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語言係一個強大嘅工具

131
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佢唔單止畀我咃社會名義

132
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佢仲塑造社會

133
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因為軟骨發育不全症遺傳

134
00:06:56,320 --> 00:06:59,576
成為矮人，我覺得好自豪

135
00:06:59,600 --> 00:07:01,840
我最自豪嘅就係身為西尼德

136
00:07:02,680 --> 00:07:05,720
軟骨發育不全症係最常見嘅侏儒症

137
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又叫「冇軟骨形成」

138
00:07:10,760 --> 00:07:14,496
我手短腳短
面部有軟骨發育不全嘅特徵

139
00:07:14,520 --> 00:07:16,840
比如我嘅額頭同鼻

140
00:07:17,560 --> 00:07:20,176
我兩隻手申唔直

141
00:07:20,200 --> 00:07:22,080
但係我舔到自己嘅手肘

142
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我係唔會秀畀你睇

143
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每約2萬名新生嬰，
就有一名患上軟骨發育不全症

144
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80% 矮人嘅父母都係中等身高

145
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即係話任何人都有可能
生軟骨發育不全嘅BB

146
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我係因為爸爸嘅遺傳

147
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我畀你哋睇下我嘅全家福

148
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我媽咪嘅身高中等

149
00:07:49,320 --> 00:07:51,536
我爹地係矮人

150
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我係最大嘅家庭成員

151
00:07:54,200 --> 00:07:56,720
我有三個妹，一個細佬

152
00:07:57,560 --> 00:07:59,240
佢哋都係中等身高

153
00:08:00,160 --> 00:08:03,576
我好幸運生係一個

154
00:08:03,600 --> 00:08:06,800
培養我嘅好奇心同韌力嘅家庭

155
00:08:07,720 --> 00:08:12,696
喺陌生人嘅不友善對待，
同愚昧影響下保護我

156
00:08:12,720 --> 00:08:16,896
令我能屈能伸，


157
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有喺物理環境和社會生存
嘅創意同自信心

158
00:08:22,800 --> 00:08:26,616
如果我講出我成功嘅一個因素

159
00:08:26,640 --> 00:08:30,760
就係，我一直都係一個受寵愛嘅囡囡

160
00:08:31,560 --> 00:08:35,456
一個牙尖嘴利嘅受寵愛囡囡

161
00:08:35,480 --> 00:08:37,159
但無論係點，我都係被寵愛嘅

162
00:08:38,360 --> 00:08:41,320
我畀咗你哋，一個我係邊個嘅睇法

163
00:08:42,280 --> 00:08:44,200
我想畀你哋一個全新嘅視野

164
00:08:45,200 --> 00:08:46,656
我想要挑戰嘅概念係

165
00:08:46,680 --> 00:08:50,240
設計係一個創造功能同美麗嘅工具

166
00:08:51,280 --> 00:08:54,280
設計對人嘅生活影響好大

167
00:08:55,400 --> 00:08:56,680
所有人

168
00:08:57,360 --> 00:09:01,056
設計係一種令我哋覺得

169
00:09:01,080 --> 00:09:05,336
俾世界接納嘅方式

170
00:09:05,360 --> 00:09:06,720
亦係一個維護尊嚴同人權嘅方式

171
00:09:07,600 --> 00:09:10,296
設計同樣可以

172
00:09:10,320 --> 00:09:12,800
傷害一個需要被忽視嘅群體

173
00:09:14,320 --> 00:09:18,160
所以，今日我想挑戰各位嘅觀念

174
00:09:18,880 --> 00:09:20,976
我哋設計冇考慮咩人？

175
00:09:21,000 --> 00:09:23,816
我哋點樣可以放大

176
00:09:23,840 --> 00:09:25,440
佢哋嘅聲音同經驗？

177
00:09:26,200 --> 00:09:27,400
下一步係咩？

178
00:09:28,400 --> 00:09:30,976
設計係個龐大嘅特權

179
00:09:31,000 --> 00:09:32,960
亦係更加大嘅責任

180
00:09:33,960 --> 00:09:36,000
我想你哋擘大你哋嘅眼睛

181
00:09:36,760 --> 00:09:37,976
多謝大家

182
00:09:38,000 --> 00:09:41,760
（拍手）