[Script Info]
Title: 
[Events]
Format: Layer, Start, End, Style, Name, MarginL, MarginR, MarginV, Effect, Text
Dialogue: 0,0:00:00.64,0:00:02.38,Default,,0000,0000,0000,,Well, good afternoon.
Dialogue: 0,0:00:02.38,0:00:04.39,Default,,0000,0000,0000,,How many of you
Dialogue: 0,0:00:04.39,0:00:07.16,Default,,0000,0000,0000,,took the ALS Ice Bucket Challenge?
Dialogue: 0,0:00:07.16,0:00:08.69,Default,,0000,0000,0000,,(Applause)
Dialogue: 0,0:00:08.69,0:00:10.95,Default,,0000,0000,0000,,Woo hoo!
Dialogue: 0,0:00:10.95,0:00:14.04,Default,,0000,0000,0000,,Well, I have to tell you, from \Nthe bottom of our hearts,
Dialogue: 0,0:00:14.04,0:00:16.82,Default,,0000,0000,0000,,thank you so very, very much.
Dialogue: 0,0:00:16.82,0:00:19.47,Default,,0000,0000,0000,,Do you know to date the ALS Association
Dialogue: 0,0:00:19.47,0:00:24.79,Default,,0000,0000,0000,,has raised 125 million dollars?
Dialogue: 0,0:00:24.79,0:00:28.36,Default,,0000,0000,0000,,Woo hoo! (Applause)
Dialogue: 0,0:00:31.24,0:00:34.51,Default,,0000,0000,0000,,It takes me back to the summer of 2011.
Dialogue: 0,0:00:34.51,0:00:36.60,Default,,0000,0000,0000,,My family, my kids had all grown up.
Dialogue: 0,0:00:36.60,0:00:38.23,Default,,0000,0000,0000,,We were officially empty nesters,
Dialogue: 0,0:00:38.23,0:00:41.20,Default,,0000,0000,0000,,and we decided, let's \Ngo on a family vacation.
Dialogue: 0,0:00:41.20,0:00:43.31,Default,,0000,0000,0000,,Jenn, my daughter, and my son-in-law
Dialogue: 0,0:00:43.31,0:00:44.88,Default,,0000,0000,0000,,came down from New York.
Dialogue: 0,0:00:44.88,0:00:46.34,Default,,0000,0000,0000,,My youngest, Andrew,
Dialogue: 0,0:00:46.34,0:00:48.90,Default,,0000,0000,0000,,he came down from his home in Charlestown
Dialogue: 0,0:00:48.90,0:00:50.68,Default,,0000,0000,0000,,where he was working in Boston,
Dialogue: 0,0:00:50.68,0:00:51.92,Default,,0000,0000,0000,,and my son Pete,
Dialogue: 0,0:00:51.92,0:00:54.86,Default,,0000,0000,0000,,who had played at \NBoston College, baseball,
Dialogue: 0,0:00:54.86,0:00:57.68,Default,,0000,0000,0000,,had played baseball \Nprofessionally in Europe,
Dialogue: 0,0:00:57.68,0:01:02.56,Default,,0000,0000,0000,,and had now come home and was selling\Ngroup insurance, he also joined us.
Dialogue: 0,0:01:02.56,0:01:03.98,Default,,0000,0000,0000,,And one night, I found myself
Dialogue: 0,0:01:03.98,0:01:05.60,Default,,0000,0000,0000,,having a beer with Pete,
Dialogue: 0,0:01:05.60,0:01:08.27,Default,,0000,0000,0000,,and Pete was looking at \Nme and he just said,
Dialogue: 0,0:01:08.27,0:01:10.46,Default,,0000,0000,0000,,"You know, Mom, I don't know,
Dialogue: 0,0:01:10.46,0:01:14.46,Default,,0000,0000,0000,,selling group insurance \Nis just not my passion."
Dialogue: 0,0:01:14.46,0:01:20.09,Default,,0000,0000,0000,,He said, "I just don't feel \NI'm living up to my potential.
Dialogue: 0,0:01:20.09,0:01:23.27,Default,,0000,0000,0000,,I don't feel this is my mission in life."
Dialogue: 0,0:01:23.27,0:01:26.71,Default,,0000,0000,0000,,And he said, "You know, \Noh by the way, Mom,
Dialogue: 0,0:01:26.71,0:01:29.51,Default,,0000,0000,0000,,I have to leave early from vacation
Dialogue: 0,0:01:29.51,0:01:33.96,Default,,0000,0000,0000,,because my inter-city league team \Nthat I play for made the playoffs,
Dialogue: 0,0:01:33.96,0:01:38.66,Default,,0000,0000,0000,,and I have to get back to Boston \Nbecause I can't let my team down.
Dialogue: 0,0:01:38.66,0:01:41.88,Default,,0000,0000,0000,,I'm just not as passionate about my job
Dialogue: 0,0:01:41.88,0:01:44.15,Default,,0000,0000,0000,,as I am about baseball."
Dialogue: 0,0:01:44.15,0:01:47.27,Default,,0000,0000,0000,,So off Pete went, and \Nleft the family vacation —
Dialogue: 0,0:01:47.27,0:01:48.98,Default,,0000,0000,0000,,break a mother's heart —
Dialogue: 0,0:01:48.98,0:01:53.30,Default,,0000,0000,0000,,and he went, and we \Nfollowed four days later
Dialogue: 0,0:01:53.30,0:01:55.94,Default,,0000,0000,0000,,to see the next playoff game.
Dialogue: 0,0:01:55.94,0:01:58.57,Default,,0000,0000,0000,,We're at the playoff game, \NPete's at the plate,
Dialogue: 0,0:01:58.57,0:02:00.97,Default,,0000,0000,0000,,and a fastball's coming in,
Dialogue: 0,0:02:00.97,0:02:03.29,Default,,0000,0000,0000,,and it hits him on the wrist.
Dialogue: 0,0:02:03.29,0:02:05.54,Default,,0000,0000,0000,,Oh, Pete.
Dialogue: 0,0:02:05.54,0:02:08.27,Default,,0000,0000,0000,,His wrist went completely limp, like this.
Dialogue: 0,0:02:08.27,0:02:09.79,Default,,0000,0000,0000,,So for the next six months,
Dialogue: 0,0:02:09.79,0:02:12.47,Default,,0000,0000,0000,,Pete went back to his home in Southie,
Dialogue: 0,0:02:12.47,0:02:15.42,Default,,0000,0000,0000,,kept working that unpassionate job,
Dialogue: 0,0:02:15.42,0:02:16.81,Default,,0000,0000,0000,,and was going to doctors
Dialogue: 0,0:02:16.81,0:02:18.69,Default,,0000,0000,0000,,to see what was wrong with this wrist
Dialogue: 0,0:02:18.69,0:02:20.56,Default,,0000,0000,0000,,that never came back.
Dialogue: 0,0:02:20.56,0:02:22.52,Default,,0000,0000,0000,,Six months later, in March,
Dialogue: 0,0:02:22.52,0:02:24.48,Default,,0000,0000,0000,,he called my husband \Nand me, and he said,
Dialogue: 0,0:02:24.48,0:02:26.49,Default,,0000,0000,0000,,"Oh, Mom and Dad, we have a doctor
Dialogue: 0,0:02:26.49,0:02:29.49,Default,,0000,0000,0000,,that found a diagnosis for that wrist.
Dialogue: 0,0:02:29.49,0:02:32.65,Default,,0000,0000,0000,,Do you want to come with the\Ndoctor's appointment with me?"
Dialogue: 0,0:02:32.65,0:02:34.62,Default,,0000,0000,0000,,I said, "Sure, we'll come in."
Dialogue: 0,0:02:34.62,0:02:37.74,Default,,0000,0000,0000,,That morning, Pete, John and I
Dialogue: 0,0:02:37.74,0:02:40.23,Default,,0000,0000,0000,,all got up, got dressed, got in our cars —
Dialogue: 0,0:02:40.23,0:02:41.57,Default,,0000,0000,0000,,three separate cars
Dialogue: 0,0:02:41.57,0:02:43.34,Default,,0000,0000,0000,,because we were going to go to work
Dialogue: 0,0:02:43.34,0:02:46.55,Default,,0000,0000,0000,,after the doctor's appointment to\Nfind out what happened to the wrist.
Dialogue: 0,0:02:46.55,0:02:49.11,Default,,0000,0000,0000,,We walked into the \Nneurologist's office, sat down,
Dialogue: 0,0:02:49.11,0:02:50.98,Default,,0000,0000,0000,,four doctors walk in,
Dialogue: 0,0:02:50.98,0:02:53.02,Default,,0000,0000,0000,,and the head neurologist sits down.
Dialogue: 0,0:02:53.02,0:02:56.06,Default,,0000,0000,0000,,And he says, "Well, Pete, we've\Nbeen looking at all the tests,
Dialogue: 0,0:02:56.06,0:02:59.47,Default,,0000,0000,0000,,and I have to tell you, \Nit's not a sprained wrist,
Dialogue: 0,0:02:59.47,0:03:01.85,Default,,0000,0000,0000,,it's not a broken wrist,
Dialogue: 0,0:03:01.85,0:03:03.90,Default,,0000,0000,0000,,it's not nerve damage in the wrist,
Dialogue: 0,0:03:03.90,0:03:05.71,Default,,0000,0000,0000,,it's not an infection,
Dialogue: 0,0:03:05.71,0:03:09.48,Default,,0000,0000,0000,,it's not Lyme disease."
Dialogue: 0,0:03:09.48,0:03:13.14,Default,,0000,0000,0000,,And there was this deliberate \Nelimination going up,
Dialogue: 0,0:03:13.14,0:03:14.72,Default,,0000,0000,0000,,and I was thinking to myself,
Dialogue: 0,0:03:14.72,0:03:18.04,Default,,0000,0000,0000,,where is he going with this?
Dialogue: 0,0:03:18.04,0:03:20.21,Default,,0000,0000,0000,,Then he put his hands on his knees,
Dialogue: 0,0:03:20.21,0:03:23.36,Default,,0000,0000,0000,,he looked right at my \N27-year-old kid, and said,
Dialogue: 0,0:03:23.36,0:03:26.58,Default,,0000,0000,0000,,"I don't know how to \Ntell a 27-year-old this:
Dialogue: 0,0:03:26.58,0:03:30.47,Default,,0000,0000,0000,,Pete, you have ALS."
Dialogue: 0,0:03:30.47,0:03:32.65,Default,,0000,0000,0000,,ALS?
Dialogue: 0,0:03:32.65,0:03:37.38,Default,,0000,0000,0000,,I had had a friend whose \N80-year-old father had ALS.
Dialogue: 0,0:03:37.38,0:03:39.44,Default,,0000,0000,0000,,I looked at my husband, he looked at me,
Dialogue: 0,0:03:39.44,0:03:41.98,Default,,0000,0000,0000,,and then we looked at the \Ndoctor, and we said, "ALS?
Dialogue: 0,0:03:41.98,0:03:44.22,Default,,0000,0000,0000,,Okay, what treatment? Let's go.
Dialogue: 0,0:03:44.22,0:03:47.52,Default,,0000,0000,0000,,What do we do? Let's go."
Dialogue: 0,0:03:47.52,0:03:50.41,Default,,0000,0000,0000,,And he looked at us, and he\Nsaid, "Mr. and Mrs. Frates,
Dialogue: 0,0:03:50.41,0:03:52.36,Default,,0000,0000,0000,,I'm sorry to tell you this,
Dialogue: 0,0:03:52.36,0:03:56.88,Default,,0000,0000,0000,,but there's no treatment \Nand there's no cure."
Dialogue: 0,0:03:56.88,0:03:59.73,Default,,0000,0000,0000,,We were the worst culprits.
Dialogue: 0,0:03:59.73,0:04:02.26,Default,,0000,0000,0000,,We didn't even understand
Dialogue: 0,0:04:02.26,0:04:04.31,Default,,0000,0000,0000,,that it had been 75 years since Lou Gehrig
Dialogue: 0,0:04:04.31,0:04:09.80,Default,,0000,0000,0000,,and nothing had been done \Nin the progress against ALS.
Dialogue: 0,0:04:09.80,0:04:12.98,Default,,0000,0000,0000,,So we all went home, and Jenn and Dan
Dialogue: 0,0:04:12.98,0:04:15.17,Default,,0000,0000,0000,,flew home from Wall Street,
Dialogue: 0,0:04:15.17,0:04:17.79,Default,,0000,0000,0000,,Andrew came home from Charlestown,
Dialogue: 0,0:04:17.79,0:04:20.22,Default,,0000,0000,0000,,and Pete went to B.C. to pick up
Dialogue: 0,0:04:20.22,0:04:23.44,Default,,0000,0000,0000,,his then-girlfriend Julie \Nand brought her home,
Dialogue: 0,0:04:23.44,0:04:25.37,Default,,0000,0000,0000,,and six hours later after diagnosis,
Dialogue: 0,0:04:25.37,0:04:28.12,Default,,0000,0000,0000,,we're sitting around \Nhaving a family dinner,
Dialogue: 0,0:04:28.12,0:04:30.46,Default,,0000,0000,0000,,and we're having small chat.
Dialogue: 0,0:04:30.46,0:04:33.28,Default,,0000,0000,0000,,I don't even remember \Ncooking dinner that night.
Dialogue: 0,0:04:33.28,0:04:39.65,Default,,0000,0000,0000,,But then our leader, Pete, set the vision,
Dialogue: 0,0:04:39.65,0:04:42.80,Default,,0000,0000,0000,,and talked to us just like \Nwe were his new team.
Dialogue: 0,0:04:42.80,0:04:46.49,Default,,0000,0000,0000,,He said, "There will be \Nno wallowing, people."
Dialogue: 0,0:04:46.49,0:04:48.81,Default,,0000,0000,0000,,He goes, "We're not looking back,
Dialogue: 0,0:04:48.81,0:04:50.87,Default,,0000,0000,0000,,we're looking forward.
Dialogue: 0,0:04:50.87,0:04:56.62,Default,,0000,0000,0000,,What an amazing opportunity \Nwe have to change the world.
Dialogue: 0,0:04:56.62,0:04:58.96,Default,,0000,0000,0000,,I'm going to change the face
Dialogue: 0,0:04:58.96,0:05:02.11,Default,,0000,0000,0000,,of this unacceptable situation of ALS.
Dialogue: 0,0:05:02.11,0:05:03.97,Default,,0000,0000,0000,,We're going to move the needle,
Dialogue: 0,0:05:03.97,0:05:08.39,Default,,0000,0000,0000,,and I'm going to get it in front\Nof philanthropists like Bill Gates."
Dialogue: 0,0:05:08.39,0:05:11.90,Default,,0000,0000,0000,,And that was it. We \Nwere given our directive.
Dialogue: 0,0:05:11.90,0:05:14.13,Default,,0000,0000,0000,,So in the days and months that followed,
Dialogue: 0,0:05:14.13,0:05:17.42,Default,,0000,0000,0000,,within a week, we had \Nour brothers and sisters
Dialogue: 0,0:05:17.42,0:05:19.57,Default,,0000,0000,0000,,and our family come to us,
Dialogue: 0,0:05:19.57,0:05:22.06,Default,,0000,0000,0000,,that they were already \Ncreating Team Frate Train.
Dialogue: 0,0:05:22.06,0:05:24.97,Default,,0000,0000,0000,,Uncle Dave, he was the webmaster;
Dialogue: 0,0:05:24.97,0:05:27.32,Default,,0000,0000,0000,,Uncle Artie, he was the accountant;
Dialogue: 0,0:05:27.32,0:05:30.10,Default,,0000,0000,0000,,Auntie Dana, she was the graphic artist;
Dialogue: 0,0:05:30.10,0:05:32.65,Default,,0000,0000,0000,,and my youngest son, Andrew,
Dialogue: 0,0:05:32.65,0:05:35.64,Default,,0000,0000,0000,,quit his job, left his \Napartment in Charlestown
Dialogue: 0,0:05:35.64,0:05:39.60,Default,,0000,0000,0000,,and says, "I'm going to take care \Nof Pete and be his caregiver."
Dialogue: 0,0:05:39.60,0:05:42.94,Default,,0000,0000,0000,,Then all those people, \Nclassmates, teammates,
Dialogue: 0,0:05:42.94,0:05:45.45,Default,,0000,0000,0000,,coworkers that Pete had inspired
Dialogue: 0,0:05:45.45,0:05:47.61,Default,,0000,0000,0000,,throughout his whole life,
Dialogue: 0,0:05:47.61,0:05:51.72,Default,,0000,0000,0000,,the circles of Pete all started\Nintersecting with one another,
Dialogue: 0,0:05:51.72,0:05:55.96,Default,,0000,0000,0000,,and made Team Frate Train.
Dialogue: 0,0:05:55.96,0:05:58.06,Default,,0000,0000,0000,,Six months after diagnosis,
Dialogue: 0,0:05:58.06,0:06:03.05,Default,,0000,0000,0000,,Pete was given an award at a \Nresearch summit for advocacy.
Dialogue: 0,0:06:03.05,0:06:05.98,Default,,0000,0000,0000,,He got up and gave a very eloquent speech,
Dialogue: 0,0:06:05.98,0:06:08.58,Default,,0000,0000,0000,,and at the end of the \Nspeech, there was a panel,
Dialogue: 0,0:06:08.58,0:06:11.48,Default,,0000,0000,0000,,and on the panel were these\Npharmaceutical executives
Dialogue: 0,0:06:11.48,0:06:13.89,Default,,0000,0000,0000,,and biochemists and clinicians
Dialogue: 0,0:06:13.89,0:06:16.26,Default,,0000,0000,0000,,and I'm sitting there and \NI'm listening to them
Dialogue: 0,0:06:16.26,0:06:19.48,Default,,0000,0000,0000,,and most of the content \Nwent straight over my head.
Dialogue: 0,0:06:19.48,0:06:21.76,Default,,0000,0000,0000,,I avoided every science \Nclass I ever could.
Dialogue: 0,0:06:21.76,0:06:24.65,Default,,0000,0000,0000,,But I was watching these people,\Nand I was listening to them,
Dialogue: 0,0:06:24.65,0:06:27.39,Default,,0000,0000,0000,,and they were saying, \N"I, I do this, I do that,"
Dialogue: 0,0:06:27.39,0:06:31.32,Default,,0000,0000,0000,,and there was a real \Nunfamiliarity between them.
Dialogue: 0,0:06:31.32,0:06:34.63,Default,,0000,0000,0000,,So at the end of their talk, the panel,
Dialogue: 0,0:06:34.63,0:06:36.46,Default,,0000,0000,0000,,they had questions and answers,
Dialogue: 0,0:06:36.46,0:06:38.56,Default,,0000,0000,0000,,and boom, my hand went right up,
Dialogue: 0,0:06:38.56,0:06:39.87,Default,,0000,0000,0000,,and I get the microphone,
Dialogue: 0,0:06:39.87,0:06:41.87,Default,,0000,0000,0000,,and I look at them and I say, "Thank you.
Dialogue: 0,0:06:41.87,0:06:44.27,Default,,0000,0000,0000,,Thank you so much for working in ALS.
Dialogue: 0,0:06:44.27,0:06:45.100,Default,,0000,0000,0000,,It means so very much to us."
Dialogue: 0,0:06:45.100,0:06:47.80,Default,,0000,0000,0000,,I said, "But I do have to tell you
Dialogue: 0,0:06:47.80,0:06:49.74,Default,,0000,0000,0000,,that I'm watching your body language
Dialogue: 0,0:06:49.74,0:06:51.86,Default,,0000,0000,0000,,and I'm listening to what you're saying.
Dialogue: 0,0:06:51.86,0:06:57.23,Default,,0000,0000,0000,,It just doesn't seem like there's a whole \Nlot of collaboration going on here.
Dialogue: 0,0:06:57.23,0:07:00.38,Default,,0000,0000,0000,,And not only that, where's the flip chart
Dialogue: 0,0:07:00.38,0:07:05.16,Default,,0000,0000,0000,,with the action items and the \Nfollow-up and the accountability?
Dialogue: 0,0:07:05.16,0:07:09.15,Default,,0000,0000,0000,,What are you going to do \Nafter you leave this room?"
Dialogue: 0,0:07:09.15,0:07:11.98,Default,,0000,0000,0000,,And then I turned around
Dialogue: 0,0:07:11.98,0:07:18.75,Default,,0000,0000,0000,,and there was about 200 pairs \Nof eyes just staring at me.
Dialogue: 0,0:07:18.75,0:07:22.31,Default,,0000,0000,0000,,And it was that point that I realized
Dialogue: 0,0:07:22.31,0:07:26.78,Default,,0000,0000,0000,,that I had talked about \Nthe elephant in the room.
Dialogue: 0,0:07:26.78,0:07:29.89,Default,,0000,0000,0000,,Thus my mission had begun.
Dialogue: 0,0:07:29.89,0:07:32.86,Default,,0000,0000,0000,,So over the next couple of years,
Dialogue: 0,0:07:32.86,0:07:35.50,Default,,0000,0000,0000,,Pete — we've had our highs and our lows.
Dialogue: 0,0:07:35.50,0:07:37.94,Default,,0000,0000,0000,,Pete was put on a compassionate use drug.
Dialogue: 0,0:07:37.94,0:07:41.12,Default,,0000,0000,0000,,It was hope in a bottle for \Nthe whole ALS community.
Dialogue: 0,0:07:41.12,0:07:43.33,Default,,0000,0000,0000,,It was in a phase III trial.
Dialogue: 0,0:07:43.33,0:07:47.92,Default,,0000,0000,0000,,Then six months later, the \Ndata comes back: no efficacy.
Dialogue: 0,0:07:47.92,0:07:50.39,Default,,0000,0000,0000,,We were supposed to \Nhave therapies overseas,
Dialogue: 0,0:07:50.39,0:07:52.54,Default,,0000,0000,0000,,and the rug was \Npulled out from under us.
Dialogue: 0,0:07:52.54,0:07:54.48,Default,,0000,0000,0000,,So for the next two years,
Dialogue: 0,0:07:54.48,0:07:58.76,Default,,0000,0000,0000,,we just watched my son \Nbe taken away from me,
Dialogue: 0,0:07:58.76,0:08:02.44,Default,,0000,0000,0000,,little by little every day.
Dialogue: 0,0:08:02.44,0:08:04.95,Default,,0000,0000,0000,,Two and a half years ago,
Dialogue: 0,0:08:04.95,0:08:08.11,Default,,0000,0000,0000,,Pete was hitting home \Nruns at baseball fields.
Dialogue: 0,0:08:08.11,0:08:11.94,Default,,0000,0000,0000,,Today, Pete's completely paralyzed.
Dialogue: 0,0:08:11.94,0:08:14.31,Default,,0000,0000,0000,,He can't hold his head up any longer.
Dialogue: 0,0:08:14.31,0:08:16.92,Default,,0000,0000,0000,,He's confined to a motorized wheelchair.
Dialogue: 0,0:08:16.92,0:08:19.14,Default,,0000,0000,0000,,He can no longer swallow or eat.
Dialogue: 0,0:08:19.14,0:08:21.03,Default,,0000,0000,0000,,He has a feeding tube.
Dialogue: 0,0:08:21.03,0:08:23.70,Default,,0000,0000,0000,,He can't speak.
Dialogue: 0,0:08:25.24,0:08:28.78,Default,,0000,0000,0000,,He talks with eye gaze technology
Dialogue: 0,0:08:28.78,0:08:30.73,Default,,0000,0000,0000,,and a speech generating device,
Dialogue: 0,0:08:30.73,0:08:32.20,Default,,0000,0000,0000,,and we're watching his lungs,
Dialogue: 0,0:08:32.20,0:08:35.20,Default,,0000,0000,0000,,because his diaphragm \Neventually is going to give out
Dialogue: 0,0:08:35.20,0:08:39.98,Default,,0000,0000,0000,,and then the decision will be made\Nto put him on a ventilator or not.
Dialogue: 0,0:08:39.98,0:08:49.59,Default,,0000,0000,0000,,ALS robs the human of all their physical \Nparts, but the brain stays intact.
Dialogue: 0,0:08:49.59,0:08:54.21,Default,,0000,0000,0000,,So July 4th, 2014,
Dialogue: 0,0:08:54.21,0:08:58.62,Default,,0000,0000,0000,,75th year of Lou Gehrig's \Ninspirational speech comes,
Dialogue: 0,0:08:58.62,0:09:04.16,Default,,0000,0000,0000,,and Pete is asked by MLB.com to write\Nan article in the Bleacher Report.
Dialogue: 0,0:09:04.16,0:09:11.25,Default,,0000,0000,0000,,And it was very significant, because he \Nwrote it using his eye gaze technology.
Dialogue: 0,0:09:11.25,0:09:17.50,Default,,0000,0000,0000,,Twenty days later, \Nthe ice started to fall.
Dialogue: 0,0:09:17.50,0:09:22.18,Default,,0000,0000,0000,,On July 27th, Pete's \Nroommate in New York City,
Dialogue: 0,0:09:22.18,0:09:24.78,Default,,0000,0000,0000,,wearing a Quinn For The Win shirt,
Dialogue: 0,0:09:24.78,0:09:28.64,Default,,0000,0000,0000,,signifying Pat Quinn, another \NALS patient known in New York,
Dialogue: 0,0:09:28.64,0:09:30.69,Default,,0000,0000,0000,,and B.C. shorts
Dialogue: 0,0:09:30.69,0:09:35.18,Default,,0000,0000,0000,,said, "I'm taking the ALS \NIce Bucket Challenge,"
Dialogue: 0,0:09:35.18,0:09:37.96,Default,,0000,0000,0000,,picked up the ice, put it over his head.
Dialogue: 0,0:09:37.96,0:09:42.17,Default,,0000,0000,0000,,"And I'm nominating ..." \NAnd he sent it up to Boston.
Dialogue: 0,0:09:42.17,0:09:45.59,Default,,0000,0000,0000,,And that was on July 27th.
Dialogue: 0,0:09:45.59,0:09:48.16,Default,,0000,0000,0000,,Over the next couple \Nof days, our news feed
Dialogue: 0,0:09:48.16,0:09:50.70,Default,,0000,0000,0000,,was full of family and friends.
Dialogue: 0,0:09:50.70,0:09:53.37,Default,,0000,0000,0000,,If you haven't gone back,\Nthe nice thing about Facebook
Dialogue: 0,0:09:53.37,0:09:55.59,Default,,0000,0000,0000,,is that you have the dates, you can go back.
Dialogue: 0,0:09:55.59,0:09:59.56,Default,,0000,0000,0000,,You've got to see Uncle Artie's \Nhuman Bloody Mary.
Dialogue: 0,0:09:59.56,0:10:02.70,Default,,0000,0000,0000,,I'm telling you, it's one of the best ones,
Dialogue: 0,0:10:02.70,0:10:05.67,Default,,0000,0000,0000,,and that was probably in day two.
Dialogue: 0,0:10:05.67,0:10:09.64,Default,,0000,0000,0000,,By about day four, Uncle \NDave, the webmaster,
Dialogue: 0,0:10:09.64,0:10:11.61,Default,,0000,0000,0000,,he isn't on Facebook,
Dialogue: 0,0:10:11.61,0:10:14.50,Default,,0000,0000,0000,,and I get a text from him, \Nand it says, "Nancy,
Dialogue: 0,0:10:14.50,0:10:17.39,Default,,0000,0000,0000,,what the hell is going on?"
Dialogue: 0,0:10:17.39,0:10:20.99,Default,,0000,0000,0000,,Uncle Dave gets a hit \Nevery time Pete's website
Dialogue: 0,0:10:20.99,0:10:24.01,Default,,0000,0000,0000,,is gone onto, and his \Nphone was blowing up.
Dialogue: 0,0:10:24.01,0:10:25.86,Default,,0000,0000,0000,,So we all sat down and we realized,
Dialogue: 0,0:10:25.86,0:10:29.72,Default,,0000,0000,0000,,money is coming in — how amazing.
Dialogue: 0,0:10:29.72,0:10:32.26,Default,,0000,0000,0000,,So we knew awareness \Nwould lead to funding,
Dialogue: 0,0:10:32.26,0:10:35.24,Default,,0000,0000,0000,,we just didn't know it would\Nonly take a couple of days.
Dialogue: 0,0:10:35.24,0:10:40.40,Default,,0000,0000,0000,,So we got together, put our best \N501(c)(3)s on Pete's website,
Dialogue: 0,0:10:40.40,0:10:42.50,Default,,0000,0000,0000,,and off we went.
Dialogue: 0,0:10:42.50,0:10:45.69,Default,,0000,0000,0000,,So week one, Boston media.
Dialogue: 0,0:10:45.69,0:10:48.15,Default,,0000,0000,0000,,Week two, national media.
Dialogue: 0,0:10:48.15,0:10:50.61,Default,,0000,0000,0000,,It was during week two \Nthat our neighbor next door
Dialogue: 0,0:10:50.61,0:10:53.00,Default,,0000,0000,0000,,opened up our door and threw a pizza
Dialogue: 0,0:10:53.00,0:10:55.36,Default,,0000,0000,0000,,across the kitchen floor, saying,
Dialogue: 0,0:10:55.36,0:10:58.30,Default,,0000,0000,0000,,"I think you people might \Nneed food in there."
Dialogue: 0,0:10:58.30,0:11:00.50,Default,,0000,0000,0000,,(Laughter)
Dialogue: 0,0:11:00.50,0:11:04.52,Default,,0000,0000,0000,,Week three, celebrities — \NEntertainment Tonight,
Dialogue: 0,0:11:04.52,0:11:06.59,Default,,0000,0000,0000,,Access Hollywood.
Dialogue: 0,0:11:06.59,0:11:12.74,Default,,0000,0000,0000,,Week four, global — BBC, Irish Radio.
Dialogue: 0,0:11:12.74,0:11:15.66,Default,,0000,0000,0000,,Did anyone see "Lost In Translation"?
Dialogue: 0,0:11:15.66,0:11:17.85,Default,,0000,0000,0000,,My husband did Japanese television.
Dialogue: 0,0:11:17.85,0:11:19.56,Default,,0000,0000,0000,,It was interesting.
Dialogue: 0,0:11:19.56,0:11:21.61,Default,,0000,0000,0000,,(Laughter)
Dialogue: 0,0:11:21.61,0:11:27.38,Default,,0000,0000,0000,,And those videos, the popular ones.
Dialogue: 0,0:11:27.38,0:11:31.86,Default,,0000,0000,0000,,Paul Bissonnette's \Nglacier video, incredible.
Dialogue: 0,0:11:31.86,0:11:34.60,Default,,0000,0000,0000,,How about the redemption nuns of Dublin?
Dialogue: 0,0:11:34.60,0:11:36.31,Default,,0000,0000,0000,,Who's seen that one?
Dialogue: 0,0:11:36.31,0:11:38.89,Default,,0000,0000,0000,,It's absolutely fantastic.
Dialogue: 0,0:11:38.89,0:11:41.11,Default,,0000,0000,0000,,J.T., Justin Timberlake.
Dialogue: 0,0:11:41.11,0:11:44.88,Default,,0000,0000,0000,,That's when we knew, that \Nwas a real A-list celebrity.
Dialogue: 0,0:11:44.88,0:11:47.77,Default,,0000,0000,0000,,I go back on my texts, and I can see
Dialogue: 0,0:11:47.77,0:11:52.90,Default,,0000,0000,0000,,"JT! JT!" My sister texting me.
Dialogue: 0,0:11:52.90,0:11:56.15,Default,,0000,0000,0000,,Angela Merkel, the chancellor of Germany.
Dialogue: 0,0:11:56.15,0:11:57.96,Default,,0000,0000,0000,,Incredible.
Dialogue: 0,0:11:57.96,0:12:00.27,Default,,0000,0000,0000,,And the ALS patients,
Dialogue: 0,0:12:00.27,0:12:03.46,Default,,0000,0000,0000,,you know what their favorite\Nones are, and their families'?
Dialogue: 0,0:12:03.46,0:12:05.05,Default,,0000,0000,0000,,All of them.
Dialogue: 0,0:12:05.05,0:12:09.90,Default,,0000,0000,0000,,Because this misunderstood and \Nunderfunded "rare" disease,
Dialogue: 0,0:12:09.90,0:12:16.38,Default,,0000,0000,0000,,they just sat and watched people \Nsaying it over and over: "ALS, ALS."
Dialogue: 0,0:12:16.38,0:12:19.59,Default,,0000,0000,0000,,It was unbelievable.
Dialogue: 0,0:12:19.59,0:12:21.63,Default,,0000,0000,0000,,And those naysayers,
Dialogue: 0,0:12:21.63,0:12:24.47,Default,,0000,0000,0000,,let's just talk a couple \Nof stats, shall we?
Dialogue: 0,0:12:24.47,0:12:27.11,Default,,0000,0000,0000,,Okay, so the ALS Association,
Dialogue: 0,0:12:27.11,0:12:31.06,Default,,0000,0000,0000,,they think by year end,\Nit'll be 160 million dollars.
Dialogue: 0,0:12:31.06,0:12:33.65,Default,,0000,0000,0000,,ALS TDI in Cambridge,
Dialogue: 0,0:12:33.65,0:12:35.70,Default,,0000,0000,0000,,they raised three million dollars.
Dialogue: 0,0:12:35.70,0:12:37.14,Default,,0000,0000,0000,,Well, guess what?
Dialogue: 0,0:12:37.14,0:12:40.44,Default,,0000,0000,0000,,They had a clinical trial for a drug\Nthat they've been developing.
Dialogue: 0,0:12:40.44,0:12:43.55,Default,,0000,0000,0000,,It was on a three-year track for funding.
Dialogue: 0,0:12:43.55,0:12:45.04,Default,,0000,0000,0000,,Two months.
Dialogue: 0,0:12:45.04,0:12:47.33,Default,,0000,0000,0000,,It's coming out starting in two months.
Dialogue: 0,0:12:47.33,0:12:51.27,Default,,0000,0000,0000,,(Applause)
Dialogue: 0,0:12:53.79,0:12:58.81,Default,,0000,0000,0000,,And YouTube has reported
Dialogue: 0,0:12:58.81,0:13:05.88,Default,,0000,0000,0000,,that over 150 countries have posted\NIce Bucket Challenges for ALS.
Dialogue: 0,0:13:05.88,0:13:12.46,Default,,0000,0000,0000,,And Facebook, 2.5 million videos,
Dialogue: 0,0:13:12.46,0:13:15.57,Default,,0000,0000,0000,,and I had the awesome adventure
Dialogue: 0,0:13:15.57,0:13:18.29,Default,,0000,0000,0000,,visiting the Facebook campus last week,
Dialogue: 0,0:13:18.29,0:13:21.06,Default,,0000,0000,0000,,and I said to them, "I know\Nwhat it was like in my house.
Dialogue: 0,0:13:21.06,0:13:23.68,Default,,0000,0000,0000,,I can't imagine what it \Nwas like around here."
Dialogue: 0,0:13:23.68,0:13:28.39,Default,,0000,0000,0000,,All she said was, "Jaw-dropping."
Dialogue: 0,0:13:28.39,0:13:33.37,Default,,0000,0000,0000,,And my family's favorite video?
Dialogue: 0,0:13:33.37,0:13:36.58,Default,,0000,0000,0000,,Bill Gates.
Dialogue: 0,0:13:36.58,0:13:39.66,Default,,0000,0000,0000,,Because the night Pete was diagnosed,
Dialogue: 0,0:13:39.66,0:13:47.24,Default,,0000,0000,0000,,he told us that he was going to get ALS in\Nfront of philanthropists like Bill Gates,
Dialogue: 0,0:13:47.24,0:13:48.79,Default,,0000,0000,0000,,and he did it.
Dialogue: 0,0:13:48.79,0:13:51.26,Default,,0000,0000,0000,,Goal number one, check.
Dialogue: 0,0:13:51.26,0:13:53.20,Default,,0000,0000,0000,,Now on to the treatment and cure.
Dialogue: 0,0:13:53.20,0:13:59.50,Default,,0000,0000,0000,,(Applause)
Dialogue: 0,0:14:02.78,0:14:05.83,Default,,0000,0000,0000,,So okay, after all of this ice,
Dialogue: 0,0:14:05.83,0:14:07.72,Default,,0000,0000,0000,,we know that it was much more
Dialogue: 0,0:14:07.72,0:14:10.55,Default,,0000,0000,0000,,than just pouring buckets of \Nice water over your head,
Dialogue: 0,0:14:10.55,0:14:12.38,Default,,0000,0000,0000,,and I really would like to leave you
Dialogue: 0,0:14:12.38,0:14:15.29,Default,,0000,0000,0000,,with a couple of things that \NI'd like you to remember.
Dialogue: 0,0:14:15.29,0:14:16.96,Default,,0000,0000,0000,,The first thing is,
Dialogue: 0,0:14:16.96,0:14:19.19,Default,,0000,0000,0000,,every morning when you wake up,
Dialogue: 0,0:14:19.19,0:14:22.27,Default,,0000,0000,0000,,you can choose to live your day in positivity.
Dialogue: 0,0:14:24.25,0:14:26.52,Default,,0000,0000,0000,,Would any of you blame me
Dialogue: 0,0:14:26.52,0:14:28.86,Default,,0000,0000,0000,,if I just was in the fetal position
Dialogue: 0,0:14:28.86,0:14:32.10,Default,,0000,0000,0000,,and pulled the covers \Nover my head every day?
Dialogue: 0,0:14:32.10,0:14:34.31,Default,,0000,0000,0000,,No, I don't think anybody would blame me,
Dialogue: 0,0:14:34.31,0:14:37.31,Default,,0000,0000,0000,,but Pete has inspired us to wake up
Dialogue: 0,0:14:37.31,0:14:40.50,Default,,0000,0000,0000,,every morning and be \Npositive and proactive.
Dialogue: 0,0:14:40.50,0:14:43.30,Default,,0000,0000,0000,,I actually had to ditch support groups
Dialogue: 0,0:14:43.30,0:14:45.78,Default,,0000,0000,0000,,because everybody was in there saying that
Dialogue: 0,0:14:45.78,0:14:47.61,Default,,0000,0000,0000,,spraying their lawns with chemicals,
Dialogue: 0,0:14:47.61,0:14:49.48,Default,,0000,0000,0000,,that's why they got ALS,
Dialogue: 0,0:14:49.48,0:14:51.44,Default,,0000,0000,0000,,and I was like, "I don't think so,"
Dialogue: 0,0:14:51.44,0:14:55.46,Default,,0000,0000,0000,,but I had to get away from the negativity.
Dialogue: 0,0:14:55.46,0:14:58.35,Default,,0000,0000,0000,,The second thing I want to leave you with
Dialogue: 0,0:14:58.35,0:15:01.16,Default,,0000,0000,0000,,is the person at the \Nmiddle of the challenge
Dialogue: 0,0:15:01.16,0:15:04.24,Default,,0000,0000,0000,,has to be willing to have \Nthe mental toughness
Dialogue: 0,0:15:04.24,0:15:07.98,Default,,0000,0000,0000,,to put themselves out there.
Dialogue: 0,0:15:07.98,0:15:10.21,Default,,0000,0000,0000,,Pete still goes to baseball games
Dialogue: 0,0:15:10.21,0:15:13.26,Default,,0000,0000,0000,,and he still sits with his \Nteammates in the dugout,
Dialogue: 0,0:15:13.26,0:15:16.15,Default,,0000,0000,0000,,and he hangs his gravity feed bag
Dialogue: 0,0:15:16.15,0:15:17.55,Default,,0000,0000,0000,,right on the cages.
Dialogue: 0,0:15:17.55,0:15:19.32,Default,,0000,0000,0000,,You'll see the kids, they're \Nup there hanging it up.
Dialogue: 0,0:15:19.32,0:15:20.99,Default,,0000,0000,0000,,"Pete, is that okay?" "Yup."
Dialogue: 0,0:15:20.99,0:15:24.24,Default,,0000,0000,0000,,And then they put it \Nright into his stomach.
Dialogue: 0,0:15:24.24,0:15:27.64,Default,,0000,0000,0000,,Because he wants them to see\Nwhat the reality of this is,
Dialogue: 0,0:15:27.64,0:15:31.01,Default,,0000,0000,0000,,and how he's never, ever going to give up.
Dialogue: 0,0:15:31.01,0:15:33.24,Default,,0000,0000,0000,,And the third thing I \Nwant to leave you with:
Dialogue: 0,0:15:33.24,0:15:36.76,Default,,0000,0000,0000,,If you ever come across a situation
Dialogue: 0,0:15:36.76,0:15:39.90,Default,,0000,0000,0000,,that you see as so unacceptable,
Dialogue: 0,0:15:39.90,0:15:43.62,Default,,0000,0000,0000,,I want you to dig down as deep as you can
Dialogue: 0,0:15:43.62,0:15:46.48,Default,,0000,0000,0000,,and find your best mother bear
Dialogue: 0,0:15:46.48,0:15:48.88,Default,,0000,0000,0000,,and go after it.
Dialogue: 0,0:15:48.88,0:15:54.44,Default,,0000,0000,0000,,(Applause)
Dialogue: 0,0:16:22.89,0:16:24.95,Default,,0000,0000,0000,,Thank you.
Dialogue: 0,0:16:24.95,0:16:28.77,Default,,0000,0000,0000,,(Applause)
Dialogue: 0,0:16:28.77,0:16:30.43,Default,,0000,0000,0000,,I know that I'm running over,
Dialogue: 0,0:16:30.43,0:16:32.20,Default,,0000,0000,0000,,but I've got to leave you with this:
Dialogue: 0,0:16:32.20,0:16:35.37,Default,,0000,0000,0000,,the gifts that my son has given me.
Dialogue: 0,0:16:35.37,0:16:38.08,Default,,0000,0000,0000,,I have had 29 years
Dialogue: 0,0:16:38.08,0:16:41.90,Default,,0000,0000,0000,,of having the honor of being the mother
Dialogue: 0,0:16:41.90,0:16:43.94,Default,,0000,0000,0000,,of Pete Frates.
Dialogue: 0,0:16:43.94,0:16:48.98,Default,,0000,0000,0000,,Pete Frates has been inspiring \Nand leading his whole life.
Dialogue: 0,0:16:48.98,0:16:51.26,Default,,0000,0000,0000,,He's thrown out kindness,
Dialogue: 0,0:16:51.26,0:16:54.90,Default,,0000,0000,0000,,and all that kindness \Nhas come back to him.
Dialogue: 0,0:16:54.90,0:17:01.34,Default,,0000,0000,0000,,He walks the face of the Earth \Nright now and knows why he's here.
Dialogue: 0,0:17:01.34,0:17:04.19,Default,,0000,0000,0000,,What a gift.
Dialogue: 0,0:17:04.19,0:17:06.82,Default,,0000,0000,0000,,The second thing that my son has given me
Dialogue: 0,0:17:06.82,0:17:09.88,Default,,0000,0000,0000,,is he's given me my mission in life.
Dialogue: 0,0:17:09.88,0:17:11.68,Default,,0000,0000,0000,,Now I know why I'm here.
Dialogue: 0,0:17:11.68,0:17:14.82,Default,,0000,0000,0000,,I'm going to save my son,
Dialogue: 0,0:17:14.82,0:17:17.61,Default,,0000,0000,0000,,and if it doesn't happen in time for him,
Dialogue: 0,0:17:17.61,0:17:20.26,Default,,0000,0000,0000,,I'm going to work so that no other mother
Dialogue: 0,0:17:20.26,0:17:23.82,Default,,0000,0000,0000,,has to go through what I'm going through.
Dialogue: 0,0:17:23.82,0:17:26.51,Default,,0000,0000,0000,,And the third thing, \Nand last but not least
Dialogue: 0,0:17:26.52,0:17:29.55,Default,,0000,0000,0000,,gift that my son has given me,
Dialogue: 0,0:17:29.55,0:17:31.63,Default,,0000,0000,0000,,as an exclamation point
Dialogue: 0,0:17:31.63,0:17:33.43,Default,,0000,0000,0000,,to the miraculous month
Dialogue: 0,0:17:33.43,0:17:37.10,Default,,0000,0000,0000,,of August 2014:
Dialogue: 0,0:17:37.10,0:17:43.25,Default,,0000,0000,0000,,That girlfriend that he went to get on \Nthe night of diagnosis is now his wife,
Dialogue: 0,0:17:43.25,0:17:51.62,Default,,0000,0000,0000,,and Pete and Julie have given me my \Ngranddaughter, Lucy Fitzgerald Frates.
Dialogue: 0,0:17:51.62,0:17:56.73,Default,,0000,0000,0000,,Lucy Fitzgerald Frates came two weeks early
Dialogue: 0,0:17:56.73,0:17:58.93,Default,,0000,0000,0000,,as the exclamation point
Dialogue: 0,0:17:58.93,0:18:03.31,Default,,0000,0000,0000,,on August 31st, 2014.
Dialogue: 0,0:18:03.31,0:18:04.98,Default,,0000,0000,0000,,And so —
Dialogue: 0,0:18:04.98,0:18:13.86,Default,,0000,0000,0000,,(Applause) —
Dialogue: 0,0:18:13.86,0:18:17.51,Default,,0000,0000,0000,,And so let me leave you with \NPete's words of inspiration
Dialogue: 0,0:18:17.51,0:18:24.78,Default,,0000,0000,0000,,that he would use to classmates,\Ncoworkers and teammates.
Dialogue: 0,0:18:24.78,0:18:28.15,Default,,0000,0000,0000,,Be passionate.
Dialogue: 0,0:18:28.15,0:18:30.66,Default,,0000,0000,0000,,Be genuine.
Dialogue: 0,0:18:30.66,0:18:33.65,Default,,0000,0000,0000,,Be hardworking.
Dialogue: 0,0:18:33.65,0:18:37.94,Default,,0000,0000,0000,,And don't forget to be great.
Dialogue: 0,0:18:37.94,0:18:40.36,Default,,0000,0000,0000,,Thank you. (Applause)